We're still waiting to find out if we (the parents) have NS or not. Our first boy (2.5 years) is fine, our infant (5 mo) was diagnosed at birth. We're waiting...
My son Connor was diagnosed at 17 months with NS and it has been a sparodic mutation (no one in either families have it, it just happened out of the blue.) I...
I completely agree with Lynda - that our children are given to us exactly as they are for a reason. As much as I wish Lauren did not have NS because of the...
We did not know. We are not planning on having anymore children so we will never know for sure if either my husband or myself carry the gene for it. If we were...