Hi Kim,
My son Connor who is now 14yrs old has pulmonary stenosis and at
birth he had an ASD and a VSD but they closed on their own. He had a
catherterisation done at age 3 months and I was told that by age 4yrs
that he would need surgery to repair the heart but this I am pleased
to say has not happened. He still gets his heart checked and his last
visit to the cardiologist was nearly 5yrs ago. If you would like to
ask any more questions then pleases feel free to contact me any time.

Lynda



- In noonan_support@yahoogroups.com, "dianebond46" <dianebond46@...>
wrote:
>
> --- In noonan_support@yahoogroups.com, "cheekymobile"
> <cheekymobile@> wrote:
> >Hi kim
> > Hi there everyone.
> >
> > My name is Kim and i live in Melbourne Australia, my son bailey
> was
> > born with Noonans syndrome and has all the characteristics of
> Noonans
> > including all the ongoing infections and continuous doctors
visits
> etc.
> >
> > The language is delayed as well as a few other areas of
development.
> >
> > Bailey has just been diagnosed with heart murmur, i am not sure
> what
> > to expect as his last heart check was normal, but i have been
> waiting
> > to see if some abnormalities come up.
> >
> > I am scared for the worst for Bailey, are there any children
that
> > escape the operations with heart murmurs.
> >
> > Thanks a lot, i hope you can reply.
> >
> >
> > kim
> >
> Hi Kim would you like to email me privately i al so live in
Australia
> and have a beautifull 7 year old grandson with, ns mildy but
with .r
> heart problems 3 infact but heart specialist very happy .regards
Diane
>