-Hi my name is Lynda and my son Connor has NS which was diagnosed at
17mths. He to has had lots of things wrong and over the years he has
had 14 operations for various things. Connor has a his own website
that you can read his story and read the latest update on him. Please
take a look at www.caringbridge.org/visit/connorrobinson. I am here
if you wish to chat.

Lynda mum to Lee 16 hypothyroidism, episodic ataxia and
schizoaffective disorder and Connnor 14 ns,pvs,asthma, eating
disorder and learning difficulties.


-- In noonan_support@yahoogroups.com, j l <sweetpea82174@...> wrote:
>
>
> hi my name Janet I am new on this site. I have a 13 year old boy who
> was a 26 week preemie with multiple disabilities. He was just
diagnosed
> with Noonan syndrome his Dr. will be doing an echo on his heart
soon. Is there any books
> about this syndrome. I went to the local library were i live and
they
> said no. I want to know more about this syndrome. excuse my typing I
> have had a stressful week.
>
>
>
>
> Thanks
> Janet
>