hi my name Janet I am new on this site. I have a 13 year old boy who was a 26 week preemie with multiple disabilities. He was just diagnosed with Noonan syndrome his Dr. will be doing an echo on his heart soon. Is there any books about this syndrome. I went to the local library were i live and they said no. I want to know more about this syndrome. excuse my typing I have had a stressful week.




                        Thanks
                          Janet