I am a mum of 5 kids and just the youngest has ns. He doesnt mainly gag, is a problem eater and failed to thrive. He has no heart problems we know of-poor muscle tone-low upper body strength-hyperflexible joints. He is also on gh as he is 103cm tall
He is 6(last saturday!!) and has been slow with most milestones-sitting walking talking etc...now he is brilliant. He was reading from around age 3 and has a talent for it as he can read upper and lower case-or handwriting. He has a very mature sense of humour for his age prefering MR BEAN or PETER KAY from a very young age(although spongebob is his fave right now!)
 
Anyway i digress..son number one now aged 27 gagged til around age 3-after eating-never found a solution and it just stopped. He still has a tendancy to gag if he smells something unpleasant or sees blood or vomit,and he is very masculine in other ways ;) just something makes his body that way.
 
Hope this helps?
 
kind regards,


Mum to Tom age 6 ns and 4 older kids(plus 2 grandchildren!!)

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To: noonan_support@yahoogroups.com
From: coachklint@...
Date: Wed, 28 May 2008 10:19:23 -0700
Subject: Re: [noonan_support] Newbie and Desperate for Help

My son Kane is 9 months old and has about the same situation as you posted.  He is an absolute doll with so much character and personality.  He eats like a champ but occasionaly gags a bit.  He is in physical therapy for hypotonia and only is behind in his upper body strength.  I have a niece (non-noonans) who just had a very small espohagus that caused the same eating issues.  She got her adnoids out at about 7 and bam! all the problems were gone.

 

I am an information junkie and can find very little out there, any guidance would be appreciated.

 

Klint Deere

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