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Newbie and Desperate for Help   Message List  
Reply | Forward Message #832 of 908 |
Re: [noonan_support] Newbie and Desperate for Help

My son Kane is 9 months old and has about the same situation as you posted.  He is an absolute doll with so much character and personality.  He eats like a champ but occasionaly gags a bit.  He is in physical therapy for hypotonia and only is behind in his upper body strength.  I have a niece (non-noonans) who just had a very small espohagus that caused the same eating issues.  She got her adnoids out at about 7 and bam! all the problems were gone.
 
I am an information junkie and can find very little out there, any guidance would be appreciated.
 
Klint Deere



Wed May 28, 2008 5:19 pm

coachklint
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Message #832 of 908 |
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Hello All, I am new here, but very glad to have found this group. My son (now 27 months old) was diagnosed with Noonan Syndrome last fall because of failure...
Pamela
silversagess
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May 28, 2008
3:31 pm

My son Kane is 9 months old and has about the same situation as you posted. He is an absolute doll with so much character and personality. He eats like a...
klint Deere
coachklint
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May 28, 2008
5:19 pm

I am a mum of 5 kids and just the youngest has ns. He doesnt mainly gag, is a problem eater and failed to thrive. He has no heart problems we know of-poor...
Linda Hall
louloohall
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May 29, 2008
5:21 am

Linda, Thank you for sharing your experiences with me. I am hoping Grant will outgrow the gagging soon. It breaks my heart to see him vomiting, although it...
silversagess
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May 29, 2008
12:56 pm
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