Hello and welcome to the noonan_support eGroup. This eGroup is relative new and there are only about 5 members so far. I am working on promoting this eGroup as well as the whole "Rare Disease Support Community."

Currently, I have over 1000 rare disease support groups. You can find a lisiting of the groups by visiting my web page at:

http://www.raredisorders.com

I personally am not affected by noonan's nor anyone I personally know. I do have two sons affected by a rare genetic disorder and they are the reason for my developing this support community. I honestly hope we don't have many members but since I know there are a lot of people out there who are dealing with these rare disorders and are needing support, I expect this community will grow.

I hope the other members of this support eGroup are able to provide you with some information and the support you need.

Please feel free to contact me if you need particular help with anything.

Again, Welcome!

David Hughes, Founder
Rare Disease Support Community
http://www.raredisorders.com
RDSC@...