Hi Maria,
My son Connor who has NS has always been small and has always had an
eating problem. He is 13yrs old but is the size of a 10yr old.He is
very thin and now he takes an anabolic steroid to try build his
muscle mass.Connor also takes scandihakes which are milkshakes
loaded with calories and he also takes calagen. We just went for his
school uniform last week and my heart went out to him as he had to
settle on a size 9-10 trousers with elastic at the back.He was so
upset that he threw a wobbly in the store. The height doesn't bother
him, it's because he is very thin that bothers him more.Just as long
as you are getting your son monitored then things will be ok. I
always thought that Connor would have growth hormone but when he
went to the consultant she said that he had already started
puberty.I always tell Connor that best things come in small
packages. Connor has a care page at
www.caringbridge.org/visit/connorrobinson Please take a look.

Lynda mum to Lee 15yr and Connor 13yrs NS
>
> --- In noonan_support@yahoogroups.com, "maria" <artononyx@> wrote:
> >
> > My son is tiny. I know people with Noonan's syndrome are small
but
> he
> > is really tiny. He just turned three last month but is only
> wearing
> > clothes in the 12-18 month range (occasionally a 2T).
> > Will he ever catch up at all? He continues to grow steadily
just
> VERY
> > slowly. The doctor has not been concerned with his growth since
he
> was
> > less than a year old (actually before finding out the DX of
> Noonan's).
> > His ped just says as long as he continues to have an upward
growth
> > curve then they will not worry.
> >
> > I mean I know that he is not going to get to the 6'+ my husband
is;
> but
> > I would really like for him to at least be taller than my 5'.
> >
> > He is also pretty delayed developmentally. He seems to develop
in
> > direct correlation to his size LOL. In the last two months he
is
> > quickly gaining new skills and closing that gap.
> >
> > Should I stop worrying? After all he is VERY healthy even with
the
> > heart condition. The kid has had only a handful of colds in his
> life
> > and really nothing else (thank God!).
> >
>