Hi
I have 2 sons with ns and my 7 yr. old was always tiny. I don't
think he weighed 20 pounds until he was 18 months old. They both
wear clothes smaller than kids their age. They do both take growth
hormone which has helped their growth. It is nothing to worry about
myped. told me they would be above 5ft.

--- In noonan_support@yahoogroups.com, "maria" <artononyx@...> wrote:
>
> My son is tiny. I know people with Noonan's syndrome are small but
he
> is really tiny. He just turned three last month but is only
wearing
> clothes in the 12-18 month range (occasionally a 2T).
> Will he ever catch up at all? He continues to grow steadily just
VERY
> slowly. The doctor has not been concerned with his growth since he
was
> less than a year old (actually before finding out the DX of
Noonan's).
> His ped just says as long as he continues to have an upward growth
> curve then they will not worry.
>
> I mean I know that he is not going to get to the 6'+ my husband is;
but
> I would really like for him to at least be taller than my 5'.
>
> He is also pretty delayed developmentally. He seems to develop in
> direct correlation to his size LOL. In the last two months he is
> quickly gaining new skills and closing that gap.
>
> Should I stop worrying? After all he is VERY healthy even with the
> heart condition. The kid has had only a handful of colds in his
life
> and really nothing else (thank God!).
>