Hi Debbie,

Try not to worry about size. It sounds as if your son is very lucky with Noonans as some children have lots of other issues and are quite poorly. Your son will grow, but will perhaps always grow at a slower pace. To give you an idea, my son is healthy, but has Noonans. He is now aged 13 and wears clothes for aged 7-8 year olds. Really cheap on clothes as they never grow out of things. At some point the doctors will give you an indication of eventual growth. With my son this may be about 5 foot. We have tried growth hormone for 12 months, but it hasn,t made a jot of difference so have just stopped. If you have any other queries then please ask again. Another positive we have just come back from holiday and have sailed into all of the attractions where under 10,s go free, while other parents have been challenged with their strapping 9 year olds. !!!!!!!!!!!!!!!

Take care

Linda

----Original Message----
From: debbie_lindeman@...
Date: 19/07/2007 5:48
To: <noonan_support@yahoogroups.com>
Subj: [noonan_support] Re: My tiny son

--- In noonan_support@yahoogroups.com, "maria" <artononyx@...> wrote:
>
> My son is tiny. I know people with Noonan's syndrome are small but
he
> is really tiny. He just turned three last month but is only
wearing
> clothes in the 12-18 month range (occasionally a 2T).
> Will he ever catch up at all? He continues to grow steadily just
VERY
> slowly. The doctor has not been concerned with his growth since he
was
> less than a year old (actually before finding out the DX of
Noonan's).
> His ped just says as long as he continues to have an upward growth
> curve then they will not worry.
>
> I mean I know that he is not going to get to the 6'+ my husband is;
but
> I would really like for him to at least be taller than my 5'.
>
> He is also pretty delayed developmentally. He seems to develop in
> direct correlation to his size LOL. In the last two months he is
> quickly gaining new skills and closing that gap.
>
> Should I stop worrying? After all he is VERY healthy even with the
> heart condition. The kid has had only a handful of colds in his
life
> and really nothing else (thank God!).
>
hi maria,my youngest daughter has noonans, she 6-1/2months old,she
weighs 10.pounds she has heart problems&failure to thrive to eat or
take a bottle,she on a feeding machine 24hours a day,and she with a
foster parent the court don`t think I can take of her,because I have
4 other girls at home but thier all healthy,I get to see her once a
week.I really miss her.i`m from Mi,if you need help you can go on the
web,and look up noonans support group.org.they can help you out. nice
talking,later..