--- In noonan_support@yahoogroups.com, "maria" <artononyx@...> wrote:
>
> My son is tiny. I know people with Noonan's syndrome are small but
he
> is really tiny. He just turned three last month but is only
wearing
> clothes in the 12-18 month range (occasionally a 2T).
> Will he ever catch up at all? He continues to grow steadily just
VERY
> slowly. The doctor has not been concerned with his growth since he
was
> less than a year old (actually before finding out the DX of
Noonan's).
> His ped just says as long as he continues to have an upward growth
> curve then they will not worry.
>
> I mean I know that he is not going to get to the 6'+ my husband is;
but
> I would really like for him to at least be taller than my 5'.
>
> He is also pretty delayed developmentally. He seems to develop in
> direct correlation to his size LOL. In the last two months he is
> quickly gaining new skills and closing that gap.
>
> Should I stop worrying? After all he is VERY healthy even with the
> heart condition. The kid has had only a handful of colds in his
life
> and really nothing else (thank God!).
>
hi maria,my youngest daughter has noonans, she 6-1/2months old,she
weighs 10.pounds she has heart problems&failure to thrive to eat or
take a bottle,she on a feeding machine 24hours a day,and she with a
foster parent the court don`t think I can take of her,because I have
4 other girls at home but thier all healthy,I get to see her once a
week.I really miss her.i`m from Mi,if you need help you can go on the
web,and look up noonans support group.org.they can help you out. nice
talking,later..