Also i would like to add - my son had several VSD's, Pulmonary
stenosis and the muscle thickening that is common with Noonans. They
were able to take away part of the thickened muscle when he had open
hear surgery to repair his valve. I don't think it was severe yet -
but without that surgery it would have evolved into that. His last
appointment was in October and the Dr said his heart is basically
a "Non-issue" it was music to my ears. I hope you can get some help
and maybe another opinion?

Take Care
Christina



--- In noonan_support@yahoogroups.com, "Amanda" <dollgril0@...> wrote:
>
> Yeah, I would to find out how to stop this spam person.
>
> I haven't been on for awhile because my son has been sick. The
Doctor
> had told me that my son's heart is getting worse and there is
nothing
> he can do to help him. He also told me that my son may leave me any
day
> now. I sat there not knowing what to say. I just couldn't beleive
he
> said that to me.
> I live in Ohio but if there is anyone may know a Doctor that you
think
> could help my son please tell me. The problems with my son's heart
is
> PULMONARY VALVE STENOSIS, ATRIAL SEPTAL DEFECT, and LEFT
VENTRICULAR
> HYPERTHROPHY.
>
>
> Mom of Dalton,
> Amanda
>