Hello Amanda, I am so sorry to hear about your little boy. We live in
Colorado and are very lucky to have The Childrens Hospital here. They
have an excellent Heart Institute and the hospital is rated in the
top 10 overall - i think number 7 last year. My sons cardiologist is
Dr Kak-Chen Chan and his heart surgeon was Dr Francois Lacour-Gayet.
They are wonderful and i am so grateful to them for everything they
have been able to do for my son. I know it would be far for you to
travel but maybe you can see if they can help you?

here it the website:

http://www.thechildrenshospital.org/conditions/heart/index.aspx

Take Care
Chris



--- In noonan_support@yahoogroups.com, "Amanda" <dollgril0@...> wrote:
>
> Yeah, I would to find out how to stop this spam person.
>
> I haven't been on for awhile because my son has been sick. The
Doctor
> had told me that my son's heart is getting worse and there is
nothing
> he can do to help him. He also told me that my son may leave me any
day
> now. I sat there not knowing what to say. I just couldn't beleive
he
> said that to me.
> I live in Ohio but if there is anyone may know a Doctor that you
think
> could help my son please tell me. The problems with my son's heart
is
> PULMONARY VALVE STENOSIS, ATRIAL SEPTAL DEFECT, and LEFT
VENTRICULAR
> HYPERTHROPHY.
>
>
> Mom of Dalton,
> Amanda
>