Gosh...I am by no means a cardiologist...but my son Henry's heart sounds quite similiar.  He too has PVS and ASD.  I think that might be it...but he is scheduled for open-heart surgery on July 10th.  He is 2 1/2 years old.  I would love to pass on your info to our cardiologist if you would like.  I absolutely love him, and I consider myself to be very hard to please when it comes to care for my baby.  We are moving back to Portland just to be close to Doernbecher Hospital where Dr. Reller works.  My only suggestion (as if you haven't received enough already...), is to listen to your heart.  If you feel that Dalton is strong enough to go on a bit longer, you need a new doc.  This whole journey with Henry has taught me to listen to my intuition.  When his feeding specialists said it was 'okay' for him to throw up everything he ate...just part of the syndrome...I knew there was a reason he couldn't digest the prescribed formula and I fought the docs and found an alternative that didn't upset his system and sure enough, he improved.  The heart surgery is scary of course, but Henry has become so strong otherwise that I believe he can fare this as well.  I often wonder why I was dealt the heartbreaker card with him...and honestly, I have learned how to love on such a deeper level than I think would've been possible without him.  The care up in Portland is exceptional...Doernbecher is a leading hospital in the country.  If you and your family ever decide to pack up and move where there might be more support, look me up.  My best to you and your family.  Take care...pretty amazing how bittersweet this motherhood thing can be at times, hmm?  -Madeline 

Amanda <dollgril0@...> wrote:

Yeah, I would to find out how to stop this spam person.

I haven't been on for awhile because my son has been sick. The Doctor
had told me that my son's heart is getting worse and there is nothing
he can do to help him. He also told me that my son may leave me any day
now. I sat there not knowing what to say. I just couldn't beleive he
said that to me.
I live in Ohio but if there is anyone may know a Doctor that you think
could help my son please tell me. The problems with my son's heart is
PULMONARY VALVE STENOSIS, ATRIAL SEPTAL DEFECT, and LEFT VENTRICULAR
HYPERTHROPHY.

Mom of Dalton,
Amanda