Hi, my name is Louisa and my 4 year old son has just been diagnosed with
Noonan's Syndrome (in november) and I found this list while browsing. My son
is severe-profoundly deaf in addition to having had open heart surgery for
pulmonic stenosis, surgery for pyloric stenosis and an orchidopexy. He has
scoliosis for which he wears a Milwaukee brace and has behaviour problems
due to ADHD, ODD and SID. He sleeps poorly and therefore so do I. He is
below 3rd percentile for height and weight and si emotionally and socially
delayed in development by about 1 1/2 years.

At the moment, dealing with his difficult behavious is the most difficult
thing. Does anyone else have a problem with this in their child?

Louisa
(mom to Ciaran, 4 NS)





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