Could you explain the heart thickening? My son's heart had lining separating the two sides of the heart get thick. Maybe the rest did too but we don't know. When you said thickening did you mean the whole heart or just part of it?
Sorry I forgot the medical terms. The first day of this year was the 6 month mark of his death but we never got a firm diagnosis of Noonan's but it is one that is still at the top of the list.
Stephanie Kunzler
livesimplecolorado <red_lionfish@...> wrote:
livesimplecolorado <red_lionfish@...> wrote:
The biggest thing with Noonans is the type of Heart defect - it is a
Pulmonary Valve stenosis which can involve VSD's or ASD's. The other
big issue with noonans is the muscle thickening in the Heart.
Usually a dead ringer for Noonans. Our son had all of these issues.
Take Care
Christina
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