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Re: [noonan_support] Re: New Here

Could you explain the heart thickening?  My son's heart had lining separating the two sides of the heart get thick.  Maybe the rest did too but we don't know.  When you said thickening did you mean the whole heart or just part of it? 
 
Sorry I forgot the medical terms.  The first day of this year was the 6 month mark of his death but we never got a firm diagnosis of Noonan's but it is one that is still at the top of the list.
 
Stephanie Kunzler

livesimplecolorado <red_lionfish@...> wrote:

The biggest thing with Noonans is the type of Heart defect - it is a
Pulmonary Valve stenosis which can involve VSD's or ASD's. The other
big issue with noonans is the muscle thickening in the Heart.
Usually a dead ringer for Noonans. Our son had all of these issues.

Take Care
Christina

>
 
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Fri Jan 12, 2007 4:38 am

crochetingmommy
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Message #683 of 908 |
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My Name is Kim and my Son Kyle(16) was born with Noonans. Well that was a dumb statement, of course he was born wit it, you don't catch it. Kyle is pretty...
katshouse2001
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Nov 11, 2004
1:19 am

I just joined this group in an effort to learn more about Noonan's syndrome, which might be a fit for my daughter. I'm sure many of you here are familiar with...
ajtroisi2
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Jan 7, 2007
7:55 pm

Hi - Welcome to the group. Many of the characteristics of Noonans can mimic other genetic conditions. Like for instance our son was tested for 22Q Deletion as...
livesimplecolorado
livesimpleco...
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Jan 9, 2007
10:15 pm

Could you explain the heart thickening? My son's heart had lining separating the two sides of the heart get thick. Maybe the rest did too but we don't know....
Crocheting Mommy
crochetingmommy
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Jan 12, 2007
4:38 am

Stephanie, First off i want to say how trully sorry i am for your loss. We went thru quite an ordeal with my sons heart and still i feel blessed that it was...
livesimplecolorado
livesimpleco...
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Jan 15, 2007
6:11 pm

In a message dated 1/7/2007 2:56:30 P.M. Eastern Standard Time, ajtroisi@... writes: The ball is in our court, so to speak, so I'm inclined to ask...
ML346@...
wl02144
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Jan 7, 2007
8:38 pm

Yea I know I was put in the hospitl about 6 months ago and most of the doctors did not know what NS was so one of them went home and looked up info and found...
savbyfaith22@...
savbygrace2000
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Jan 9, 2007
11:06 pm
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