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HI good news   Message List  
Reply | Forward Message #658 of 908 |
Re: [noonan_support] Re: HI good news

well I do not have a son but I have pulmary stinosis they told me when I was a kid that I would need heart surguary but they were able to hold off still don't need one yet I have NS.  I don't know if you were talking to me or not but thought I would say what kind of heart probm I have
 
Ken 24 NS
Fri Nov 3, 2006 3:13 am

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savbygrace2000
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Forward 		Message #658 of 908 |
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My son is starting to walk. The doc's are so happy because they didn't think he would do this good. I am just so proud of him. But he has to wear leg braces... 		Amanda
dollgril0
Offline Send Email 		Oct 30, 2006
3:03 pm

Hi Amanda, What terrific news? May I ask how you learnt that your son's ankles were lacking in strength? My son Lachlan also has Noonans, with a majority of...
Jenni Van Deyk
jenni_vandeyk
Offline Send Email 		Oct 31, 2006
12:44 am

Hey, I was the one pointed out that is ankle was not looking right. I seen it when he would pull himself up to a standing point. I would see that he was...
Amanda
dollgril0
Offline Send Email 		Oct 31, 2006
2:35 pm

Hi again Group, Sorry it has taken me so long to reply, especially to Amanda. Lachlan recently underwent major surgery for an RVOTO (Right Ventricular Outflow...
Jenni Van Deyk
jenni_vandeyk
Offline Send Email 		Nov 17, 2006
2:02 am

Well done Dalton keep the good work up. My son didn't walk until he was 22 months and he had to wear gators to prevent his knees from going too far back. I was...
LEE ROBINSON
lee770894
Offline Send Email 		Oct 31, 2006
2:58 pm

I looked over my paper work but I forgot what age I started walking but it was late and then I started walking in to things because I am so blind....
savbyfaith22@...
savbygrace2000
Offline Send Email 		Nov 3, 2006
1:30 am

well I do not have a son but I have pulmary stinosis they told me when I was a kid that I would need heart surguary but they were able to hold off still don't...
savbyfaith22@...
savbygrace2000
Offline Send Email 		Nov 3, 2006
3:26 am

Oh that is excellent news!!! My son didnt walk until 14 1/2 mos old and my daughter didnt start to walk until she was 22 1/2 mos old they both have NS. ... ...
Katie B.
andnowtheres2
Offline Send Email 		Nov 5, 2006
8:04 pm
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