Hello and welcome to the forum!  My name is Madeline and our son is Henry (age 2).  He was first tested for Noonan's when he was just 2mo. old.  Here's the tricky part with the 'diagnosis'...even when the child DOES have Noonan's, it only comes up 'Positive' 50% of the time.  Not the best, when you're looking for clarity.  That said, he has been seen by some of the best geneticists in the nation (via video tape, photos, etc.), and although they haven't given a positive, they all believe that's what he has.  After two years of trying to find out for sure, honestly, I've decided that it is great having all the information provided to give some general guidlines on what can be roughly expected...but like with other diagnosis, there is so much variable from child to child anyhow.  Now I am just addressing each issue; Failure to Thrive (I HIGHLY recommend a Naturepath OVER a feeding clinic...just my thoughts), ASD, VSD, Global Delays...So, please, if you have ANY questions in the future, feel free to shoot me an email.  I have learned more about this world than I ever expected to!  Take care, Madeline

jessica_doty272000 <jessica_doty272000@...> wrote: