Hi Jessica,

               Welcome to the group, I am sure you will be able to get the help and support from this group.My name is Lynda and I live in Scotland. I am a single mum raising two sons, Lee 14yrs and Connor 12yrs and who has Noonans.Connor was diagnosed at 17 months with NS.He has pulmonary stenosis, asthma, eating disorder, bowel problem, astigmitism, behaviour problem, hyperexstensive joints, learning difficulties (dyslexia,Mearse Irlin Syndrome).He also has a large liver, kidney, and spleen at the moment.Over the years he has had lots of surgery, he has had 4 eye operations to correct squints, he has another one to get so he is being assessed for it at the moment.Connor has had a catherterisation done when he was a baby and at that time he had two holes in his heart but i am pleased to say that they closed on their own and hasn;t needed any heart surgery so far. He has had 4 anal stretches done as he suffers from very bad constipation,he's also had a hernia repair and teste repair done as well. Connor has been through a lot but i wouldn't change him for the world. He is in 2nd year at High school and with learning support he is doing great. Kids with Noonans do take a little longer to reach their milestones but they do get their.Take one day at a time and as long as your son gets all his checks done  so that he can be monitored then he will do fine. If you would like to ask me some questions please don't hesitate to contact me. Hope to hear from you soon.

Lynda   

jessica_doty272000 <jessica_doty272000@...> wrote: