Hi Madeline! My son Dalton was having a hard time gaining weight when
I brought him home. He was on the NG tube. He was put on a 30 cal
diet. But when ever I feed him he would vomit it back up. He was even
on a pump at night so he was being fed all night long. When ever I
would wake up he would be sook in vomit. Dalton would eat jar food by
mouth during the day but that would come back up to. I didn't know why
he couldn't keep any thing down. Then one day I was thinking it was
the NG Tube, Maybe that was bothing him. So I took it out. I thought
if I take it out for a day to see how he would do. He went the hole
day with out vomiting. So I never put it back in. He is now 15 months
old and is 18lbs. Is Henry on a special deit or eating Jar baby food?
I now when Dalton started Jar Baby food and his deit he started to
gain well and he started keeping his food down helped too.

Amanda


--- In noonan_support@yahoogroups.com, "madeline" <mckeefamily1@...>
wrote:
>
> Hi, I am wondering if anyone could share with me their info on slow
> weight gain. Henry is now 21 months and still only weighs 15lb
7oz.
> He has recently gone off the g-tube since he is eating as much
orally
> as he was taking through the tube. Also, he just tested negative
for
> Celiac Disease. The doc's are checking to see if there is any other
> malabsorption possibility. He has only gained a few ounces over the
> past few months. He is active, happy, learning new things
daily...has
> heart defects that will be repaired 'when he puts on enough
weight'.
> Ugh. Any feedback would be much appreciated. -Madeline
>