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failure to thrive   Message List  
Reply | Forward Message #550 of 908 |
Re: [noonan_support] failure to thrive

Hi my son Connor was very slow to gain weight.He is now 12 years old and is still struggling to put weight on.Connor has been to see the dietitian on and off over the years.Now he has been put on milk shake drinks (scandishake mix). He has got to eat with them and at times this is proving difficult for him as his bowel has been in spasms for the past few days.I think it's a Noonans thing.I can remember Connor at Henry's age and he seemed to stick at 16lbs for about a year.I found that doctors didn't seem to help, so as usual i took one day at a time.
Lynda mum of Lee 14yrs and Connor 12yrs ns. 
 
                                               madeline <mckeefamily1@...> wrote:
 
Hi, I am wondering if anyone could share with me their info on slow
weight gain.  Henry is now 21 months and still only weighs 15lb 7oz. 
He has recently gone off the g-tube since he is eating as much orally
as he was taking through the tube.  Also, he just tested negative for
Celiac Disease.  The doc's are checking to see if there is any other
malabsorption possibility.  He has only gained a few ounces over the
past few months.  He is active, happy, learning new things daily...has
heart defects that will be repaired 'when he puts on enough weight'. 
Ugh.  Any feedback would be much appreciated. -Madeline





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Fri Jun 2, 2006 3:39 pm

lynrob1011
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Message #550 of 908 |
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Hi, I am wondering if anyone could share with me their info on slow weight gain. Henry is now 21 months and still only weighs 15lb 7oz. He has recently gone...
madeline
mckeefamily1
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Jun 2, 2006
1:45 am

Hi my son Connor was very slow to gain weight.He is now 12 years old and is still struggling to put weight on.Connor has been to see the dietitian on and off...
lynda robinson
lynrob1011
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Jun 2, 2006
3:42 pm

Thank you so much for your feedback. I feel a bit overwhelmed when the specialists at one of the best hospitals in the Northwest says, "Well, I don't know...
Madeline mckee
mckeefamily1
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Jun 3, 2006
1:36 am

Hi Madeline! My son Dalton was having a hard time gaining weight when I brought him home. He was on the NG tube. He was put on a 30 cal diet. But when ever I...
Amanda
dollgril0
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Jun 3, 2006
12:41 pm
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