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Reply | Forward Message #535 of 908 |
Re: [noonan_support] New Member

Hi Linda my name is Lynda also and i have a 12 year year son Connor. On Wednesday he is going to the paediatric doctor and he wants to discuss Growth Hormone treatment.We have never discussed it before and i have left the decision up to him.Connor is terrified of needles so we will just have to wait and see what happens. Connor is 4ft 5ins but i am only 4ft 10ins and my mum is only 4ft 6ins so i don't think that height will be the issue. He hasn't started puberty yet so may be it will help with it. Connor has had so many health issues over the years.He has had lots of operations and he never stops to amaze me with the things that he does. I was at a school review last week and his teachers told me that he is operating at a 13 - 15 year old in some areas, i was so proud of my wee man as he has learning difficulties (dyslexia and mearse irlin syndrome). He can't process information and put it down on paper and this frustrates him  some times. Connor does get loads of help and he uses a laptop due to the pain in his joints as they are very hyperexstensive.He gets a readers scribe for exams.
If you would like to talk some more please contact me at lynrob1011@... Hope to hear from you soon. 

lbirchenough <lindabirchenough@...> wrote:
Hi,

My son Dan has Noonans Syndrome. He is 12 years old, and used to being
so much shorter than all of his friends. I would love to exchange
experiences etc with any other parents.
Linda






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Mon May 8, 2006 8:01 pm

lynrob1011
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Message #535 of 908 |
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Hi, My name is Laura and my son Jacob is 22 months old. He has an undiagnosed sydrome but one of his doctors said that he looked like he might have Noonan...
jaymz3372
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May 19, 2005
9:17 pm

Hi, my name is Madeline and my son is Henry - 8 months old. My baby is also still 'undiagnosed', and has been tested for Noonan's (at 4mo). The test took...
Madeline mckee
mckeefamily1
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May 22, 2005
5:29 am

Hi, My son Dan has Noonans Syndrome. He is 12 years old, and used to being so much shorter than all of his friends. I would love to exchange experiences etc...
lbirchenough
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May 7, 2006
7:36 pm

Hi Linda my name is Lynda also and i have a 12 year year son Connor. On Wednesday he is going to the paediatric doctor and he wants to discuss Growth Hormone...
lynda robinson
lynrob1011
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May 8, 2006
8:01 pm

Hi there, i am a new member, Bailey my 3 and half year old has noonans, i live in melbourne aus. He is very agressive and hyperactive, he has speech...
cheekymobile
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Jun 7, 2006
2:40 am

Hi Laura, Welcome! My name is Christina - my son is Aaron. He just came back positive for Noonans. The testing is actually very simple - prick of the finger...
livesimplecolorado
livesimpleco...
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Jun 14, 2006
6:29 pm
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