--- In noonan_support@yahoogroups.com, "Kris" <bigrockcreations@...>
wrote:
>
> Hi,
>
> My name is kris and my daughter Nicia is 7. We were on growth
> hormone for two years...we took her off of it. Here is my
opionion.
> The doctors said that the most it may add for her would be three
> inches. At the most even with growth hormone Nicia will only be
> around 4'8". Thats WITH the growth hormone. I didnt feel she was
> growing much more with it than with out it...and I felt she had
too
> many other issues to deal with. The shots were very difficult on
her
> and it we decided that we would ask her when she was older if it
was
> something she would want. They said as long as she started before
> puberty it would be helpful..but Im not convinced. Other people
may
> have their own opionions but thats mine. I hope it helps.
>
> Kris Mom to Nicia age 7 NS
>
>
>
> --- In noonan_support@yahoogroups.com, "louloohall" <louloohall@>
> wrote:
> >
> > Hi-I guess this has probably been covered long beore I joined
this
> > group..
> > I have been offered growth hormone for Tom today and am unsure
> what to
> > do. Keith wants him to have it. Will it effect his adult height
or
> not?
> > What are the side effects?
> >
> > Endocrinologist says sooner we start the better-Tom is 3years
> 8months
> > and 83.8cm tall-he is eating well and has no heart problem we
know
> of.
> >
> > Any advice or opinions will be greatly appreciated-please email
me
> > privately so we don't fill the list with stuff other people have
> > already discussed?
> >
> > I really appreciate anyone with experience or an opinion
replying!
> >
> > Thanks, Linda

Dear Linda,


Another Linda here.
My son Dan has to make up his mind about growth hormones this week.
We have always said no, but he is starting to feel his lack of
height, as he is now 12 and still in size 7 clothes. He needs to
undergo the output tests again which he had when he was 5 as they
say they need better evidence to gain the funding for the hormones.
He is really frightened about the tests. Tough decisions for a 12
year old to make. As Dan is now 12 I am a fair expert on Noonans
although all children are different. Quite happy to exchange
experiences.

Linda

> >
>