Having problems with message search?
Hi Madeline..my daughter had her sugery last May she was 2 1/2. They had tried to repair the ASD through catheritzation the previous Jan, but it didn't work. She was in hospital for 5 days home for 35hrs then back in for 2 days for complications. It really didn't take her long the recover. She was up and walking around two days post-op. She was still very tured for about a month but after that had all the energy in the world. We had never seen her with so much energy.
Oh! and her colour was great almost immdeiately..she wasn't blue anymore she was a wonderful colour of pink.
If you would like I can send you some post-op pictures. They are a little shocking, but we had seen pictures of other children and it did help with the recovery shock.
Thank you for the welcome and I would be happy to answer any questions you have.
Tracy
Madeline mckee <mckeefamily1@...> wrote:
Madeline mckee <mckeefamily1@...> wrote:
Welcome, and congratulations on your recent delivery! My name is Madeline and I have a 6yr. old daughter (no NS) and an 18mo. old boy with undiagnosed but highly probable NS. He fits almost every mark, including the opinions of highly respected geneticists...but the blood work came back negative. I guess that happens often. How old was your daughter when she had her heart surgery? How long was the recovery time? We know Henry will need it at some point (between now and age 4...) and we are a bit nervous. Well, thanks if you have the time to answer these questions...and again, welcome!
my2heartbabies <my2heartbabies@...> wrote:Hello, I'm new here. I have two children with NS. A 3 year old
daughter, and 7wks old son. My daughter had open heart surgery to
repair an ASD and a few other problems with her heart. She has curly
hair, short hair line, feeding issues and weight gain issues,
behavioural issues, sleep issues. However, she is on the high end for
hieght for her age.
My son is having many feeding issues right now, slow weight gain.
Droopy eye lids, undecended testes, low set ears, and an ASD, VSD, and
PS.
I'm looking forward to meeting some people here, as we are going
through everything with both children.
My daughter will be starting school in September, hoping that the
transition into school will be successful.
Tracy
__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com
Offline 
Send Email