Hi Tracy,
Welcome! - my name is Christina. I have a 15mo old son named Aaron.
Last visit with cardiologist was told that he may have Noonans. We
are going for genetic testing on Tuesday. He is a little peanut with
fairly thick wooly hair and huge hazel eyes. He was born with a ps
and ASD which he had 4 surgeries (2 cath and 2 open heart). He is
doing great after the last OH - which is a huge relief for us. He was
born with undesended testes and a hypospadias that was repaired at 6
months. He also has a chest deformity (i think they call it pigeon
chest??) that makes his chest kinda poke out. So far we are waiting
to see how the genetic testing goes - but all signs seem to point to
noonans. It is good to meet you - welcome to the group!

C



--- In noonan_support@yahoogroups.com, "my2heartbabies"
<my2heartbabies@...> wrote:
>
> Hello, I'm new here. I have two children with NS. A 3 year old
> daughter, and 7wks old son. My daughter had open heart surgery to
> repair an ASD and a few other problems with her heart. She has
curly
> hair, short hair line, feeding issues and weight gain issues,
> behavioural issues, sleep issues. However, she is on the high end
for
> hieght for her age.
>
> My son is having many feeding issues right now, slow weight gain.
> Droopy eye lids, undecended testes, low set ears, and an ASD, VSD,
and
> PS.
>
> I'm looking forward to meeting some people here, as we are going
> through everything with both children.
>
> My daughter will be starting school in September, hoping that the
> transition into school will be successful.
>
> Tracy
>