Hello,
Im Katie, mom to 2 children. Jacob 3, probable Noonans and Kylie 2,
who has Noonans. Kylie and Jacob show similiarities(sp?) so when we
go back to children's they are testing our son as well. Kylie has PS
& ASD. She had a balloon valvuloplasty at 4/5 mos old. Her ASD is
small-moderate so they are keeping an eye on it for now. Weve seen
our fair share of specialists and therapists :) It's never ending!!!

<3 Katie
http://www.babyhomepages.net/imktbear
--- In noonan_support@yahoogroups.com, "my2heartbabies"
<my2heartbabies@...> wrote:
>
> Hello, I'm new here. I have two children with NS. A 3 year old
> daughter, and 7wks old son. My daughter had open heart surgery to
> repair an ASD and a few other problems with her heart. She has
curly
> hair, short hair line, feeding issues and weight gain issues,
> behavioural issues, sleep issues. However, she is on the high end
for
> hieght for her age.
>
> My son is having many feeding issues right now, slow weight gain.
> Droopy eye lids, undecended testes, low set ears, and an ASD, VSD,
and
> PS.
>
> I'm looking forward to meeting some people here, as we are going
> through everything with both children.
>
> My daughter will be starting school in September, hoping that the
> transition into school will be successful.
>
> Tracy
>