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Hello Tracy,
My name is Wendy. My daughter Morgan is 7 and she has NS. She had surgery to correct her pulmonic stenosis when she was 18 months. She also has trouble gaining weight but she is taller than most NS children. We are dealing with some behavioral issues. She also had curly blonde hair, the lighest blue eyes I have ever seen. Her eyes are almost white. Morgan has changed our lives forever. She has been a strugle at times but I think that has made me a better parents. Well if you have any questions please feel free to ask.
Wendy
my2heartbabies <my2heartbabies@...> wrote:
my2heartbabies <my2heartbabies@...> wrote:
Hello, I'm new here. I have two children with NS. A 3 year old
daughter, and 7wks old son. My daughter had open heart surgery to
repair an ASD and a few other problems with her heart. She has curly
hair, short hair line, feeding issues and weight gain issues,
behavioural issues, sleep issues. However, she is on the high end for
hieght for her age.
My son is having many feeding issues right now, slow weight gain.
Droopy eye lids, undecended testes, low set ears, and an ASD, VSD, and
PS.
I'm looking forward to meeting some people here, as we are going
through everything with both children.
My daughter will be starting school in September, hoping that the
transition into school will be successful.
Tracy
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