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Reply | Forward Message #363 of 908 |
Hi

I have NS, I wanted to talk to some people who have or know someone
who has it.






Thu Nov 3, 2005 12:24 am

clytn_chrstn
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Message #363 of 908 |
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OMG that is so mean! My inlaws are a big pain too grrr just makes ya glad you dont have to live with em! ... From: "bailblue" <bailblue@...> To:...
kwild1@...
idontlikethat2
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May 6, 2005
2:05 am

I have NS, I wanted to talk to some people who have or know someone who has it....
Christina
clytn_chrstn
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Nov 3, 2005
12:24 am

Hello I am 23 almost 24 years old and has NS if you want to talk I will talk I don't know a lot about it? my name is Ken what's your name and age if you ...
savbyfaith22@...
savbygrace2000
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Nov 3, 2005
3:58 pm

Hi I'm 24 and my name is Christina I also want to find more about NS and I'm also here to talk too. It's nice to know that there is someone who know what its...
Christina Clayton
clytn_chrstn
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Nov 9, 2005
6:54 am

Christina do you have NS?...
savbyfaith22@...
savbygrace2000
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Nov 9, 2005
3:38 pm

Yes I have NS. My family found out when I was 18 months old you? savbyfaith22@... wrote:Christina do you have NS? ... YAHOO! GROUPS LINKS Visit your group...
Christina Clayton
clytn_chrstn
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Nov 13, 2005
7:35 pm

They found out when I was born. so if you ever want to talk I can talk I live in the United States. and in the state of Michigan....
savbyfaith22@...
savbygrace2000
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Nov 14, 2005
1:59 am

I live in the in the Washington. and if you what to talk I'm here. savbyfaith22@... wrote: They found out when I was born. so if you ever want to...
Christina Clayton
clytn_chrstn
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Nov 14, 2005
7:54 am

Is it hard for you to talk to your friends about ns? I talk to some and others I don't. It's hard to open up to some with out them juging you for some thing...
Christina Clayton
clytn_chrstn
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Dec 1, 2005
7:45 am

Yes its very hard to talk to my friends about NS. Everytime I do they look at me like I am strange I normally just stay home and try to hid out but it ...
savbyfaith22@...
savbygrace2000
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Dec 3, 2005
8:00 pm

Do you mind if I ask what problems you have had. My infant son was DX'd as Noonan's; and wonder what I should expect (or could). ... Yahoo! Shopping Find...
nail artist Maria
artononyx
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Dec 3, 2005
8:11 pm

well its real hard to tell each person has diffent problems I could send you some info if you would like see I have Heart problems, Vision problems and ...
savbyfaith22@...
savbygrace2000
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Dec 3, 2005
8:22 pm

You can email me privately so you don't need to share anything you don't want to with everyone. I haev read up on Noonan's but it seems like other than the...
nail artist Maria
artononyx
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Dec 3, 2005
9:37 pm

I don't know if this is private or not...I honestly don't really understand the whole Noonan Group mailing...but I'm not worried about sharing anything. My...
Madeline mckee
mckeefamily1
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Dec 4, 2005
7:24 am

I don't mind sharing.... My son is 18 months tomorrow. He was 11 weeks early. He was DX's in July at only 13 months actual. I feel he was DX'd too young....
nail artist Maria
artononyx
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Dec 4, 2005
4:01 pm

I have some health problems like I have heart promblems, I had a hole in my heart when I was born it was fix. I'm 4'9" and a half. I have some other things...
Christina Clayton
clytn_chrstn
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Dec 4, 2005
8:23 pm

well I have a lot wrong with me. I do hold a full time job as a janitor and sometimes that is even hard for me. most people with NS will have slow groth...
savbyfaith22@...
savbygrace2000
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Dec 3, 2005
11:00 pm

Well I don't have Kids I have NS. That's why its hard to talk about it. It might be a lot easier if it was my kid....
savbyfaith22@...
savbygrace2000
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Dec 4, 2005
8:00 pm

I think about having kids, But I couldn't do that to them and the man that would be the father of them. It was hard for me to explan that to my ex husband. ...
Christina Clayton
clytn_chrstn
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Dec 4, 2005
8:29 pm

I can understand having a hard time talking about issues you have or have had ... especially with people who have no clue what Noonan's is. I would say that...
maria
artononyx
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Dec 6, 2005
4:32 am

Growning up for me was hard because I didn't fully understand what wrong with me. I wachted as my sister with thew life not having the promblems that have and...
Christina Clayton
clytn_chrstn
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Dec 7, 2005
10:18 am

Christina Clayton <clytn_chrstn@...> wrote: Growning up for me was hard because I didn't fully understand what wrong with me. I wachted as my sister...
lynda robinson
lynrob1011
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Dec 7, 2005
11:02 am

Its not that I don't want to share I just kept it all inside for so many years that's its still hard to talk about it. I do have some pictures of me on the...
savbyfaith22@...
savbygrace2000
Offline Send Email
Dec 6, 2005
6:19 am
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