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Hey,
How you? The only time Dalton seen a genetist was at birth and that was to tell us he had NS. He also did a family history chat to see if me or my husband had it or if any one in the family. I never evern heard of NS until they told me Dalton had it. He is being seen by every other kind of Doctor though. He even has a nurse that comes to the house to see him. All of his therapy's too. He get OT, PT and speech. They all come on different days so with that and doctor appointment all week long I am so busy I don't have time to do anything else. He is just now starting to roll over. He still can't hold his head up for ever long. How old did you say Morgan was? Dalton is going to be 8 month tomarrow. Have a nice day.
Amanda
Jim Moseley <usmcjarhead@...> wrote:
Jim Moseley <usmcjarhead@...> wrote:
Yes, it was hard at first. Because like you, my husband and I wanted to know where we went wrong. Before we heard NS, we were told that Morgan may have Turner's or Williams Syndrome but when the blood test came back negative for both, the doctors told us about NS. We did not get a for sure diganoses until she was 13 months. But all the doctors we talk to tell us that Morgan has NS in a mild form. She had reflux really bad, she did not gain weight like other children, she reaced her milestones late, and she is short and skinny. At our last genetist appt this summer is was in the 20% for weight and height. Which that is pretty good. Well if you have any questions don't hesitate to ask.Wendy
Amanda <dollgril0@...> wrote:Yeah, Having someone to talk to helps. your right on that. Was it hard
on you when you first found out? I found out that my son had it at
birth. I was thinking what did I do wrong.
Amanda
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