Hi, My name is Melinda and my son ALex was diagnosed at the age of 2
with NS. He was born with ASD/VSD heart condition along with several
other chararcteristics of the NS. He has the short stature along with
the web knect and the eyes and ears. We went through up and downs with
him, just like you all are going through. He is now 5yrs old and doing
very well. He does have a low weight gain along with legally deaf in
both ears. He goes to preschool every day and they work with him on
sign language. He is his own person doesnt like for anyone to help him
out. He is still behind on a few things, hes not pottied trained doesnt
even like to sit on one. But other than that hes a very energetic
little boy.