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HI   Message List  
Reply | Forward Message #358 of 908 |
Re: [noonan_support] Re: HI

If you not mind me asking, What kinds of problems or illness did you
have to over come? Are you still over coming illness? It just seem
like alot for any one to go through. I don't think I could do it. My
son had all ready ben through alot, he had a long hospital stay and
in that time he has had 8 surgery's. But some was because of his
treatment.

Amanda
 
well I also had to have long hospital stays I did not have to have any surgery but I do have to go to a specialist for my heart conditions and also my vision  my mind sometimes likes to wonder.  So far that's all I know I might have went though a lot more my mom would be better to know then I would.


Tue Nov 1, 2005 2:48 pm

savbygrace2000
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Message #358 of 908 |
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My name is Amanda. I just joined this group hoping to make friends and get support. My son was born with NS. He was born March 3rd 2005. I don't understand...
Amanda
dollgril0
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Oct 30, 2005
6:37 pm

Hello Amanda, You are not alone. Just having people to talk to helps. My 6 year old daughter was diagnosed when she was 11 months. The internet is full of...
Jim Moseley
morgidsmom
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Oct 31, 2005
12:48 am

Yeah, Having someone to talk to helps. your right on that. Was it hard on you when you first found out? I found out that my son had it at birth. I was thinking...
Amanda
dollgril0
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Oct 31, 2005
4:12 pm

Yes, it was hard at first. Because like you, my husband and I wanted to know where we went wrong. Before we heard NS, we were told that Morgan may have...
Jim Moseley
morgidsmom
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Nov 1, 2005
3:20 am

Hey, How you? The only time Dalton seen a genetist was at birth and that was to tell us he had NS. He also did a family history chat to see if me or my husband...
Amanda Springer
dollgril0
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Nov 2, 2005
5:36 pm

Hey Amanda, Morgan is going to be 7 on the 25th of this month. She was a late blumer. She did not sit until she was 9 month, crawl at 12 months, and walked...
Jim Moseley
morgidsmom
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Nov 4, 2005
2:22 am

Hi Amanda, My name is Linda. I have a 6 year old son with noonans. Like you when he was born I wondered what did I do wrong? Then someone told me something...
Linda Veiszer
heymickey11
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Nov 3, 2005
6:26 pm

Hi Amanda welcome to the group my name is Ken and I am currently 23 will be 24 in two mouths and I have had NS since I was born I still have a lot of problems...
savbyfaith22@...
savbygrace2000
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Oct 31, 2005
2:23 am

... will be ... lot of ... job down I ... If you not mind me asking, What kinds of problems or illness did you have to over come? Are you still over coming...
Amanda
dollgril0
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Oct 31, 2005
4:08 pm

If you not mind me asking, What kinds of problems or illness did you have to over come? Are you still over coming illness? It just seem like alot for any one...
savbyfaith22@...
savbygrace2000
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Nov 1, 2005
2:49 pm
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