Lynda here again,I have just gone through some of the worries that
parents have with their little ones and it does remind me of my son
Connor when he was a baby.Connor is nearly 12 and looking back things
were really hectic.Connor has low set ears,and is going to have
surgery to pin them back,he wears glasses as he has a
stigmatism,pulmonary stenosis,asthma,his joints are hyperexstensive so
are easily dislocated. If this happens he can pop them back into
place.Connor suffers from constipation and an eating disorder.This
seems to be a visious circle as he can go for days not realy eating
much.He has Mearse Irlin Syndrome and is dyslexic.He is very
inteligent but at times this frustrates him because he can't process
information to put down on paper,orally he is great.Connor has just
started high school and with support i hope he will be ok.He is very
small for his age and he hasn't started puberty yet.I was told that he
had actually stopped growing but they won't do any thing about it
until he is 14yrs.Connor has only lost 4 baby teeth and the dentist
has told me that he might not have any teeth present underneath to
come through.I would love to hear from anyone.
Bye for now Lynda.
Lynda here again,I have just gone through some of the worries that parents have with their little ones and it does remind me of my son Connor when he was a...
Hi, my name is Madeline and we are still waiting for the diagnosis...but word has it (as it seems to go for us, we never hear things directly...only from other...
Just been reading my email and they were very interesting. My son Connor has been through an awful lot over the past 12 years so i do understand what you are...
Just thought i would post an other message.Christmas is nearly here and i want to wish you all A Very Merry Christmas & A Happy New Year. We are just plodding...
i am happy you an your sons were able to get information an also Connor learing there are people who work with noonans for as you know an i know we dont know...
Hi Lynda, Firstly Happy Christmas and New Year to you to :) That conference seems like a brilliant idea to discuss all the different aspects of Noonan's. I'm...
Hi Lorrain thanks for replying,yes they are held all over and mostly England.If you contact bdfnewlife.co.uk site then they will keep you informed of any...
Wow, I can only imagine how great it must've been to see/meet others touched by Noonan's. My baby still has not been diagnosed...but my heart tells me it is...
hello everybody, Hoping everyone is going to have a wonderful Christmas. My 6 year old son Morgan, has started a new dosage of dexidrine and is doing wonderful...
Its hard living in the United States I don't hear about much about NS so that's one of the resions its hard for me to discuss the Issues that are bothering me...
Its ok Ken. You dont have to talk if you don't want to, but if you do I'll listen savbyfaith22@... wrote: Its hard living in the United States I don't hear...
Ken if you want to talk then i am here to listen as well.Right now my son Connor is a bit confused about Noonans as he has a lot going on health wise.Hope to...
well right now the only thing that is going on is my ears I think its starting a little late in life but who knows if it has to do with noonas so if it does...
Hope everyone had a good Christmas? We did,Connor got his blood results they were neg for Arthritis so that's good but it still doesn't help his situation at...
Hello Lynda, I'm glad to hear you had a good Christmas...so did we! The whole family (my husband, daughter Bella (age 5 no ns) Henry, and I all went up to the...
Hi Madeline hope this finds you and the family in good health? The book sounds great so i will get a copy. I think that it might be good for Connor so you know...
Hi Lynda, I think I forgot to mention that since starting the yoga exercises (only 5 days ago!) Henry has nearly doubled what he wants to eat...including...
I was cleaning up some old papers of mine and happen to find my old doctors papers and found out that when I was about 3 months old that I did have a feeding...
Logan has issues with eating. Breast feeds like a champ. Does pretty darn well with baby food but then when it comes to table food .... well, not so good....
Zack has isues with eating too. He is now on table food since he has started rejecting baby food. He is 28 months old and is 28 1/2 inches and 17 lbs. He ...
Does anyones children have problems with dislocated joints?Connor was sent home from school with a pain in his shoulder.He had told the teacher that he had...
Hi Lynda, How is Connor's muscle tone? Would you mind if I asked my sister (she is a licensed acupuncturist...getting her doctorates degree) about the loose...
Madeline that would be great i dont mind at all.His muscle tone is very poor.There is no muscle in the thighs or at the knees.Right now i would take and try...
Sorry it's taken me so long to respond...both of my children were sick this past week...ugh! Crazy about Lee, I'm sorry to hear that...why would the doc's...
Hi Madeline, Thank you for your information you have given me. Connor has an appointment with the consultant tomorrow so we are going to go in armed with...