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Reply | Forward Message #33 of 908 |
Re: Lorraine


Hi Debra,

JMML is juvenile myelomonocytic leukaemia. Children with either
noonan's or jmml are more predisposed to getting the other we've been
told.
If your son does have jmml for his age he would have to be one of the
10% of children where the leukaemia doesn't progress into acute and
just stays dormant.
White blood count can go high when an infection is present but for
peace of mind maybe ask your hospital to do full blood count.
If it is discovered he has jmml I don't think it would make much
difference to you or him because he's managed to get to 21 whereas
most children need there transplant by 2 yrs old.
Please try not to worry.
Take care Lorraine x

--- In noonan_support@yahoogroups.com, "Debra Finley"
<debrafinley777@h...> wrote:
>






Sun Nov 21, 2004 11:08 am

bailblue
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Message #33 of 908 |
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Hi, My 7mth old son Bailey was diagnosed with noonans last week. It's a 2nd shock for us because he was also diagnosed with jmml (juvenile myelomonocytic...
bailblue
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Nov 15, 2004
4:13 pm

Hi Lorraine, My 14 month old Zachary was diagnosed with noonans in mid-October. He also was diagnosed with JMML in October 2003. The doctors didn't think that...
Beth
ethansmom219
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Nov 16, 2004
2:17 am

Hi, My son Ryan 6 years old has Noonan Syndrome. We are going to have our first heart surgery on December 6th. He has Pulmonary Valve Stenosis as well as...
Deb Rabideau
debtar85
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Nov 16, 2004
6:22 pm

Hi Beth, I've just been reading Zachary's caringbridge page. I logged onto jmml webpage and saw one of your messages. How strange that you should be sending...
bailblue
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Nov 18, 2004
3:23 pm

HELLO, I RECEIVED YOUR LETTER THROUGH, BEING ON THE NOONAN WEB SITE.I TO HAVE A SON WITH NOONAN SYNDROME/ HEART DEFECT. I WANT TO KNOW MORE ABOUT THIS JMML....
Debra Finley
debrafinley777
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Nov 20, 2004
4:50 am

Hi Debra, JMML is juvenile myelomonocytic leukaemia. Children with either noonan's or jmml are more predisposed to getting the other we've been told. If your...
bailblue
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Nov 21, 2004
11:09 am

He sure is adorable! He doesnt look like alot of the "noonan" kids I have seen online tho....ya better watch out he will be breakin hearts lol ... From: "Beth"...
kwild1@...
idontlikethat2
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Apr 28, 2005
11:50 pm

Thankyou for your lovely comments about Bailey. Obviously being his mum I think he is sooooo gorgeous!!! Beth, if you could send me a pack that would be...
bailblue
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Apr 29, 2005
8:38 am

LOL he sure is! ... From: "bailblue" <bailblue@...> To: <noonan_support@yahoogroups.com> Sent: Friday, April 29, 2005 3:38 AM Subject: [noonan_support]...
kwild1@...
idontlikethat2
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Apr 29, 2005
2:34 pm
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