thankyou it is a great help i can at least try to get the ball
rolling.i feel so alone with all of this.my doctor and health visitor
had never heard of it and i have had to print off information for
them.my partner is in denial.he will not except anything is wrong.it
took months of me begging my doctor to refer him.his cardiologist said
he didnt have it.but mothers instinct told me something was wrong from
the start.i am on maternity leave with my third child at the moment but
should be returning to work soon.i dont want to.i dont feel that i can
leave him now it has been confirmed.i hated leaving him before.i have
heard of familys with noonans meet up at different events if you know
of any soon that would be great if you could let me know.i hope your
son is doing well.thanks again