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SSI?   Message List  
Reply | Forward Message #328 of 908 |
Re: [noonan_support] SSI?

I will try...just e-mail me back if you need more info...
SSI is supplement income for disability.  It is quite a maze to navigate through, however, I recommend you proceed (assuming you have time, a good place to organize all the information you will need/receive, and a lot of patience).  Basically, you are asked to prove that your childs disability is great enough to warrent receiving money from the gov.  There is a phone interview and a lot of paperwork once you get through that door.  When our baby was born with multiple heart conditions (ASD, VSD, etc.) and severe feeding issues (failure to thrive, G-tube), I ended up needing to stay home full time...thus dropping our income drastically.  So long as you have good communication with your son's doc's and again, lot's of patience, I believe it is worth it.  We received back pay (it took 6 months for them to approve our son's case) which was put into a separate account for anything pertaining to your childs' needs or, in our case, towards a car when our car suddenly died and left us unable to get to the doc's, etc.).  Our son still does not have a diagnosis, so I do believe it is possible to receive money...I'm amazed at how much I've learned about writing down everyone's name, their title, etc.  The whole 'you will be your child's greatest advocate' really starts here, in my opinion...there and at the doctor's office.  Please let me know if I can be of any more help...I have saved most of the important phone numbers...Good luck, and do follow through with it, any help is help, no? -Madeline

lozzar8 <lozzar8@...> wrote:
could somebody explain what SSI is please.Mson has noonans and has
had
surgery for his pulmonary stenosis.thanks



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Thu Sep 8, 2005 2:49 pm

mckeefamily1
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Message #328 of 908 |
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My son currently gets SSI due to the pulmonary stenosis. He hadn't been DX'd with Noonan's when he qualified. Does Noonan's qualify as a disibility? Maria...
maria
artononyx
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Jul 22, 2005
10:22 pm

I am not sure I know that I don't get SSI for having noonas....
savbyfaith22@...
savbygrace2000
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Jul 23, 2005
12:16 am

I know NS is a disability but I am not sure if one could get SSI. My daughter has pulmonic stenosis. She had surgery when she was 18 months old. How did you...
Jim Moseley
morgidsmom
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Jul 23, 2005
1:23 pm

Actually, when he was in the NICU I was told to apply. But the paperwork they gave me said he needed to be under a certain weight; which he wasn't. After he...
nail artist Maria
artononyx
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Jul 23, 2005
6:27 pm

Childrend with Noonans can very well get SSI becouse my daughter gets it . I was told to apply when she was born but i waited until she was a year old and...
donnally4u@...
luvegrump1
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Jul 24, 2005
2:49 am

our son also receives SSI...but I think it is because of his heart issues and/or failure to thrive. I don't know about the Noonan's diagnosis qualifications....
Madeline mckee
mckeefamily1
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Jul 25, 2005
2:57 am

could somebody explain what SSI is please.Mson has noonans and has had surgery for his pulmonary stenosis.thanks...
lozzar8
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Sep 7, 2005
4:16 pm

I will try...just e-mail me back if you need more info... SSI is supplement income for disability. It is quite a maze to navigate through, however, I...
Madeline mckee
mckeefamily1
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Sep 8, 2005
2:50 pm

has your child had any intervention done for his PS? We got denied SSI for our daughter. Maybe once she gets the genetic testing done and they tell us she has...
Katie B.
andnowtheres2
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Nov 12, 2005
10:47 pm

My baby gets SSI but I've been told it takes ALOT of work...and I spent tons of time on the phone and actively asking the doc's to help. I would call back SSI...
Madeline mckee
mckeefamily1
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Nov 14, 2005
12:56 am

Our son Henry will need to have a procedure done on his heart (for his ASD) in 2 or 3 years, depending on his size...he is pretty small and they have to wait...
Madeline mckee
mckeefamily1
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Nov 16, 2005
7:20 am
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