-Thanks for the welcome.
Logan is very healthy!! He has only had 2-3 VERY mild colds his
short life. This even when DH and both DD had bronchitis and I had
a horrible cold; he got barely a sniffle!!

He is developmentally delayed which is very common in preemies ..
he'll be getting therapy soon.

As far as his weight.. well I explained about his growth pattern and
eating being thrown out of whack when we started packing and moved.
I think he's doing well now that he is eating better. He's also
beginning to explore 'people' food. So eating isn't a problem. And
the ped isn't worried.
My daughter like I said is only 68# and about 4'8" at almost 12
years of age.

Well I said I would tell a bit about my family...
my mother is only 4'9" and weighed under 100# till after she had 2
kids
my father is only around 5'7"
my brother is only around 5'9"
I am only 5' 1/2" and was never more than 100# soaking wet until
after I had my second child

When we left the geneticist yesterday my mother was very offended
and I didn't understand why. Later she broke down crying. She
later called and told me that she was crying cause her whole life
people teased her and basically made her feel worthless because of
her small size.... she didn't want Logan to go through that as
well. I was heart broken; I felt guilty for bringing her. I only
wanted the doctor to see the family traits. Even seeing my daughter
didn't seem to affect the doctor at all. (she and Logan look sooo
much alike that when my oldest was looking at baby pictures of her
sister she said "aww what look how cute Logan was in my arms" then
she realized that she was way too young in the picture and it was
actually her sister not Logan)

Oh I forgot to say that Logan has pulmonic stenosis.
I have to go.. I am sure there will be more to say at another time.
Maria
-- In noonan_support@yahoogroups.com, "Linda Hall" <louloohall@h...>
wrote:
> Awww Maria,
>
> Firstly welcome to the group!! My son was diagnosed with NS at age
almost
> 3years in April-he seems healthy most of the time-ear problems and
slow at
> getting around-he is now 24llb but was similar to your son at age
1. He
> still wears 12/18months clothes! He is as bright as a button
> mentally-advanced I am sure..I have four other kids none of whom
have NS and
> it was such a shock when I got Tom's diagnosis. Is Logan quite
healthy? Tom
> sees a dietician and will have none of the high calorie food so
has gained
> weight only with our perseverance! I am told the tide can turn and
eating
> can become more 'normal' around this age and it is getting
betterday by day
> so there is hope!!
> When you feel ready tell us more about your family-we are here to
help..
>
> kind regards, Linda
>
> >From: "maria" <artononyx@y...>
> >Reply-To: noonan_support@yahoogroups.com
> >To: noonan_support@yahoogroups.com
> >Subject: [noonan_support] Hello - son just DX'd
> >Date: Wed, 13 Jul 2005 15:18:56 -0000
> >
> >Hi my name is Maria. My son is Logan. He was born on June 5,
2004
> >at 29 weeks. He is now 13 months old / 10 months adjusted.
> >
> >He was just diagnosed with Noonan's yesterday. I am having a
really
> >hard time dealing with this. There is alot I can say but right
now
> >just don't have it in me (things like my family size etc). One
> >thing I do want to say is: I don't understand how they can say my
> >son has Noonan's but my daughter doesn't (if you compare pictures
of
> >them at the same age they are like twins!! when people see them
> >together they are taken aback at how alike they look now! - she
also
> >is super small for her age weighing in at only 68# at almost 12
> >years).
> >
> >Anyway, the geneticist was really concerned about his size. He is
> >25 inches long and 12# 12 ounces. The pediatrician is quite happy
> >with his growth! In reading some of the past messages by members
of
> >this group I am having a hard time understanding what the big
issue
> >is with his size??!!
> >
> > posts like: "You know what? I think it is possible...I feel
the
> >same and we are approaching two years old in August! Zack still
> >feels "new" yet "old" at the same time. I do have to get out of
one
> >bad habit though...since he is so small (26 3/4inches), I treat
him
> >like he is still a baby but we are pushing the terrible twos! It
is
> >hard to remember that at times. We just saw the pediatrician today
> >for a weight check and he is back down to 14 lbs, 5 ozs. He had a
> >bout of constipation over the weekend so there goes any weight
> >gain."
> >
> > and: "He is still fluctuating between 13 lbs 13 ozs and 14
> >lbs. He has been this weight for a few months now." (*21 mnth old
> >Zack)
> >
> >Anyway they want me to take him to a GI and nutritionist. Thing
is
> >I know he was gaining well in April and first 1/2 of May cause we
> >had boosted his calories. Then we found out we were moving in 2
> >weeks and were packing like mad. At that point he dropped his
> >intake of calorie boosted food to only a couple of spoonfuls per
day
> >(previously he was eating several ounces daily). He continued
this
> >until just about 3 weeks ago and has steadily increased his
intake.
> >In fact he just gained around 8-10 ounces in 10 days (I give a
range
> >cause his weight varies by scale).
> >
> >How do you deal with these docs who want to push calories? And
> >honestly, I can see boosting the calories and having him gain
weight
> >but he can't eat only high calorie foods for the rest of his life?
> >
> >Any advice or words of encouragement would be very appreciated.
> >Maria
> >
> >
>
>
> Linda