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My Name is Kim and my Son Kyle(16) was born with Noonans. Well that
was a dumb statement, of course he was born wit it, you don't catch
it.
Kyle is pretty healthy. He has a rough go as an infant. He is only
4'7" right now and weighs 80lbs. He has a great presonality and is
only mildly delayed in school. This year he is getting his feet ad
legs operated on. he has no arches which has caused his legs to bow
in. At the same time he has requested to have his bones lengthened.
He is a brave boy. He will alse have his eye lids done and his ears
pinned back. This was all by his request. Socially he is not delayed
and he feels left behind due to his physical appearence. I am a
single mother with Multiple Sclerosis. It can be quite tough at
times but he has taught me so much. Number 1 is patience. Kyle also
has ADHD. Some days there is not a ritalin pill big enough!!!
Mike his brother does not have noonans, but is delayed in his
reading and speech. The specialist thinks he may carry the gene but
have a very very mild case of noonans.
Kyle does not have a heart abnomality. Thank Goodness. He does have
trouble with his muscles ripping.
Anyway, its nice to meet all of you. I can't wait to chat.
Kim
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