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Reply | Forward Message #25 of 907 |

My Name is Kim and my Son Kyle(16) was born with Noonans. Well that
was a dumb statement, of course he was born wit it, you don't catch
it.

Kyle is pretty healthy. He has a rough go as an infant. He is only
4'7" right now and weighs 80lbs. He has a great presonality and is
only mildly delayed in school. This year he is getting his feet ad
legs operated on. he has no arches which has caused his legs to bow
in. At the same time he has requested to have his bones lengthened.
He is a brave boy. He will alse have his eye lids done and his ears
pinned back. This was all by his request. Socially he is not delayed
and he feels left behind due to his physical appearence. I am a
single mother with Multiple Sclerosis. It can be quite tough at
times but he has taught me so much. Number 1 is patience. Kyle also
has ADHD. Some days there is not a ritalin pill big enough!!!
Mike his brother does not have noonans, but is delayed in his
reading and speech. The specialist thinks he may carry the gene but
have a very very mild case of noonans.
Kyle does not have a heart abnomality. Thank Goodness. He does have
trouble with his muscles ripping.
Anyway, its nice to meet all of you. I can't wait to chat.

Kim






Thu Nov 11, 2004 1:19 am

katshouse2001
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Message #25 of 907 |
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My Name is Kim and my Son Kyle(16) was born with Noonans. Well that was a dumb statement, of course he was born wit it, you don't catch it. Kyle is pretty...
katshouse2001
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Nov 11, 2004
1:19 am

I just joined this group in an effort to learn more about Noonan's syndrome, which might be a fit for my daughter. I'm sure many of you here are familiar with...
ajtroisi2
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Jan 7, 2007
7:55 pm

Hi - Welcome to the group. Many of the characteristics of Noonans can mimic other genetic conditions. Like for instance our son was tested for 22Q Deletion as...
livesimplecolorado
livesimpleco...
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Jan 9, 2007
10:15 pm

Could you explain the heart thickening? My son's heart had lining separating the two sides of the heart get thick. Maybe the rest did too but we don't know....
Crocheting Mommy
crochetingmommy
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Jan 12, 2007
4:38 am

Stephanie, First off i want to say how trully sorry i am for your loss. We went thru quite an ordeal with my sons heart and still i feel blessed that it was...
livesimplecolorado
livesimpleco...
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Jan 15, 2007
6:11 pm

In a message dated 1/7/2007 2:56:30 P.M. Eastern Standard Time, ajtroisi@... writes: The ball is in our court, so to speak, so I'm inclined to ask...
ML346@...
wl02144
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Jan 7, 2007
8:38 pm

Yea I know I was put in the hospitl about 6 months ago and most of the doctors did not know what NS was so one of them went home and looked up info and found...
savbyfaith22@...
savbygrace2000
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Jan 9, 2007
11:06 pm
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