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hiya
my name is jane, my son jonathan has noonans .. i wouldnt change him for the world he has his own little personallity ..we do have our moment with him tho ... jonathan doesnt have problems with eating .. he is the oppersite he eats like anythink ..
jonathan has already had open heart surgery .. he suffers with 2 defects of the heart .. he has behavour problems too ...
if u fany a chat anytime my addy is jane_field1974@...
look forward to chattin to you and your family
jane xx
Beth <zack082503@...> wrote:
Beth <zack082503@...> wrote:
Hi,
My name is Beth and my son Zachary was just diagnosed with Noonan
Syndrome this past week. He is almost 14 months old. He tested
positive for JMML at 2 months old but so far it is transient. We
have a cardiology appt. coming up but to date has not had any heart
problems that we know of. I still don't know much about Noonan
Syndrome and am wondering what we are going to be dealing with in the
future, both near and far. Zack does have feeding issues - FTT,
reflux and allergic colitis.
I have a website set up for him: www.caringbridge.org/pa/zack
Hope to get to know you and your children and learn more about this
syndrome.
Beth
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