Hi,

My name is Beth and my son Zachary was just diagnosed with Noonan
Syndrome this past week. He is almost 14 months old. He tested
positive for JMML at 2 months old but so far it is transient. We
have a cardiology appt. coming up but to date has not had any heart
problems that we know of. I still don't know much about Noonan
Syndrome and am wondering what we are going to be dealing with in the
future, both near and far. Zack does have feeding issues - FTT,
reflux and allergic colitis.
I have a website set up for him: www.caringbridge.org/pa/zack
Hope to get to know you and your children and learn more about this
syndrome.

Beth