hello I am new here an really need help in understanding this for I
have an 8 year old who has been diagnoised with noonan syndrome.,she
has got the features of this. she has ASD,pulmonary stenosis an just
last week we were told she is going blind. he develomental delays are
as of an 4 year old . i need to know what to expect before it happens
can anyone help me please thank you debbie