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Reply | Forward Message #17 of 908 |
Re: [noonan_support] hello

  Oh my gosh I have a million and one ? to ask you. How did he get diagnosed at birth? It took me a year and 3 major hospitols.Peyton was just labled delayed and FTT.He does have a ASD. He is a very classic dase of Noonans without the retardation.He looks like every other kid on the web site.I don't know how you handled 20 years of this, every day I ask why me and my friends tell me I must have done something reall bad in a previous life.Did your son do the whole therapy thing? what kinds and how long did it last? Did you do growth hormones?HYow old was he when he walked or talked? Was he tiny forever? peyton is 18 mo and weighs 15 lb. The worst thing is I have a niece 3 weeks younger than Peyton who is the perfect baby, walked on time sat on time talks non stop eats everthing is at 100% for her height Peyton is not even on that dumd chart.Hope to hear from you soon.

                                                    Molly Mitosinka


Sat Jan 17, 2004 4:56 am

peytonrichard
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I have a son who is 17 months, who was diagnosed with Noonans at 12 months. Are there any other babies out there?...
peytonrichard
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Jan 7, 2004
2:46 am

HELLO, MY NAME IS DEBRA, I HAVE A SON WITH NOONAN SYNDROME. HE WAS DIAGNOSED AT BIRTH. IF THERE ARE ANY QUESTIONS THAT YOU MIGHT HAVE. I WOULD BE HAPPY TO HELP...
Debra Finley
debrafinley777
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Jan 14, 2004
4:35 am

... Debra i have a son age 11yrs,he has been through a lot in the past years.Connor has a dent in his chest and is talking about surgery to make it better.He...
lynrob1726
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Jan 3, 2005
8:48 pm

Oh my gosh I have a million and one ? to ask you. How did he get diagnosed at birth? It took me a year and 3 major hospitols.Peyton was just labled delayed and...
peytonrichard@...
peytonrichard
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Jan 17, 2004
4:56 am

hello i know this is from 2004 but my baby was diagnosed a few weeks ago. I know your child is older now so therefore you might have more info. please respond....
poeticsham
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Feb 1, 2007
1:21 am

Hi again Shalene, first of all, Congratulations on the birth of your little boy!!! I didn't realize when I emailed you earlier that he was so new in the...
Madeline mckee
mckeefamily1
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Feb 1, 2007
5:44 am

... the doctor today because it seemed as If every time he passed gas he was in pain. The doctor says he has collic. But then she informs me that he has a...
poeticsham
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Feb 2, 2007
1:36 am
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