I am a 30 year old male who has delt with NS firsthand. I have some
of the symptoms of NS such as webbed-neck(corrected with plastic
surgery at 13), heart problems(2 heart surgeries at 10 and 28 years
old),ADD, unpronounced chin, sunken-in chest and some hearing loss.
I have never seen anyone with a webbed-neck in my life and this was
devastating to me as a child. I still sometimes deal with those bad
childhood memories and never had anyone to relate to what I was/am
going through. I have taken all types of medication to balance my
mental state, anti-depressants, anti-anxiety, and blood pressure
medicine. I have gotten better and broke out of my shyness stage
around 18. But sometimes I find myself still self-conscious about
the scars on my neck and body from my surgeries. I would like to
correspond with anyone interested with what I have been through.
Sincerely,
Kevin Bottorff