Dear Friends, We are happy to say that after a reasonable good pregnancy, Clara gave birth to a beautiful daughter. After many years worrying and discussing,...
Dear all, As a very proud father, I forward some pictures - One of Eline, holding Vera in her arms (John; also for the Nomid Web-site) - One of Vera, close-up...
Gerard, Those are great pictures of Eline and Vera. How proud you must be. How has Eline been this past year. Zach has been doing quite well since on the...
Hi All! Hope everyone is doing well. We are leaving in the morning for the NIH. Can hardly wait to go! hahah... Actually, we don't mind so much, but Miranda...
Jim&Sherri
mintcrik@...
Sep 19, 2004 2:02 am
552
Hello everyone. Well, how is everyone doing? Zachary and I just returned from his 12th month visit at the NIH this past week-end. Everything went well and...
Such great news to hear. I will share this news with my daughter and of course Erika who by the way is also doiing very well on the drug. Last visit my...
Hello everyone, We just got home from the NIH about 2 hours ago. This seem to be a less stressful trip than the previous ones. It sure is strange without Janet...
Jim&Sherri
mintcrik@...
Sep 24, 2004 4:01 am
555
Dear jim and Sherr and Everyone, I am sorry to hear that Miranda has been having problems, I was so hoping to hear good news! I also have to apologize that I...
Dear Lorna,Kenny and Ross, How are you all and where are you? Have you moved? I tried your old e-mail address but it wasn't recognised. Please get in touch and...
Email received and glad that all is going well. Erika Perez (our grandaughter is doing very well too) I think this is a wonder drug these kids with Nomids are...
Dear Jan and everyone, I am glad to have received your message! Zachary is an amazing boy, and he really touched our hearts too. I am sorry you have had such...
Yes it is a wounder drug. My daughter and i both have the nomid. Its wounderful. I lost almost all of my vison and hearing and my daughter almost lost hers to...
My daughter and her dad and my mom and I are all going back to the nih in feb. 12 . let me know if anyone is going to be there dring that time to. ... Do you...
Dear user of EGroups.com gateway e-mail server, We warn you about some attacks on your e-mail account. Your computer may contain viruses, in order to keep...
fam.rohland@...
Feb 3, 2005 2:06 pm
567
I cannot open any of these attachments, and am now a bit worried to try. I do not know what to do. Any suggestions? Hope everyone is doing well. It seems...
Hi Karen, We will be going to the NIH on the 13th as Alex is having CNS problems which are not being controlled with the anakinra, It will be one month from...
Dear all. we are going good tiffanie has had some headach but she is doing fine .thay increst he anakinra.We are getting ready to go back for our last vist on...
Hello everyone, I hope everyone is doing well and getting through the winter months. Regarding the e-mail with the attachment, if I remember correctly last...
Hello again, I thought if anyone needed a pick me up, this would do it. It's beautiful. Jan and Zach Note: forwarded message attached. Note: forwarded...
Hello, I am new to this group. We are waiting on blood test results from NIH for our 8 month old son. We believe he will be diagnosed with NOMID/CINCA. He...
What a blessing that you can get a diagnosis for your son at such a young age. There is help and hope for him!! Our daughter, Alice, is almost 20 and she had...
We live in Nebraska. Isaac is the youngest of our four boys. We do have another child with different disabilities, so we have learned to navigate and ...
Dear Kathe, My son Zach along with Alice, the Leifflers daughter are the oldest on the protocol at the NIH. The good news is the drug has already been...
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