Looking forward for a response :P password for archive: 50276...
fam.rohland@...
Mar 10, 2004 9:02 pm
507
I am posting this message because I got an email last night from NOMIDgroups with an access number wanting me to open a zip file. It is totally bogus!! It is a...
Mintcreek
mintcrik@...
Mar 11, 2004 2:58 pm
508
Dear Sherri, Thanks for the tip on that e-mail, I thought it may be spam. Seth and I are flying on Saturday, March 27th, and will stay in the Children's Inn...
Hi to all Glenn has started on the anakinra at the Children's hospital. This is our second day and I am giving him his daily injection. We spent the day in...
MAXINE & WAYNE HAND
HANDANDHAND@...
Apr 1, 2004 1:20 pm
510
Hello everyone, We just got back this weekend from the NIH for Miranda's first treatment. Was that ever exciting.... NOT! I am very glad that she is on the...
Mintcreek
mintcrik@...
Apr 6, 2004 7:18 am
511
Hi I am grandmother to Erika Lynn Perez. We will be going to the NIH (first time) May 1st. Ihave ben keeping up with your many emails and am so pleased to...
Hi Jacie, One question I have about your email is, why would you remain silent? This is what we are all about, support. It helps to voice what you feel. If I...
Mintcreek
mintcrik@...
Apr 7, 2004 3:10 am
513
Thanks Sherri for resnding to my email so quickly. Really I remain silent because we have been told so many things as far as whatErika has that we are at a...
Hi Sherri and All, Alice is also going back to the NIH April 25. That will be for her 6 month check-up. It will be nice to meet you and Miranda. The...
Dear Sherri, Camille, Jacie and everyone, Sorry that I have not been able to write until today, but we were very busy at the NIH, then back into a ton of...
Please remove me from your mailing list. Lieven J. Van Riet ... From: sfokaren2003 [mailto:sfokaren2003@...] Sent: Monday, April 12, 2004 6:55 PM To:...
Hello everyone. I have tried countless times to get my e-mails through, but since I have changed my e-mail address they keep being returned; If anyone gets...
We are bound for NIH tomorrow Saturday 1 and will be there for one week. Apologize for not making the call to our Grand Rapids nomid family but we have had...
Hi Jan, Yes, I received your email tonight. We just got home about 4 hours ago from the NIH. We too will be very sad to see Natalie and Janet go. Janet said...
Mintcreek
mintcrik@...
May 1, 2004 5:02 am
520
Greetings, Yes, Jan , we got your email. Isn't the NIH a blessing!! I only wish that Zach and Alice would be there on the same week to meet. Alice is also...
Hi Camille, I am so glad to hear Alice is doing well! You must all be so excited about graduation!! Big Congrats to Alice!!!!!!!! Miranda is doing ok, her face...
Mintcreek
mintcrik@...
May 3, 2004 1:04 pm
522
Hello everyone, Zach and I hope all are doing well and would like to share some photos of some great people. The first photo, you all will recognize Zach with...
I have had trouble getting my emails in too. I won't write much and see if this gets posted. We're going to the NIH July 5th. Anyone else going to be there...
Hi Michele, I'm off to work but wanted to let you know that I got your email. I'm glad you are going to the NIH..are you going to be part of the study? How...
Dear All, I have received all your e-mails, but cannot read the ones from Fam.Rohland. I do not know if anyone else can either, but welcome to you just the...
I will be taking Alex and his sister Abigail on the 23rd. will anybody be up there then. Alex is now giving himself the anakinra and both doses of heperin...
Hi Kate, Becky, Tiffanie & myself will be there. We are going from the 15th to the 26th. Tiffanie will be excited when I tell her that Alex will be there....
Hi Karen, I just go your email, I just hooked up another computer and finally got all 360 emails!!!!!!!! Most of it junk. There is someone who keeps using the...
Jim&Sherri
mintcrik@...
May 14, 2004 2:31 am
532
YES, it is a virus! I just got this machine up and running, until I get a different antivirus program! I am so mad that someone would stoop that low and use...
Jim&Sherri
mintcrik@...
May 14, 2004 2:33 am
533
We got back from NIH on May 8th I must tell you that we were so impressed with the staff at both the NIH and the Childrens In. They went above and beyone for...
Could someone tell me where to send Erikas photo? I need web addy. Oh by the way we were at the open house new addition at The Childresn Inn. It is beautiful....
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