Dear everyone, Seth has been on the Anakinra for 3 doses, and has been doing very well with it. His rash subsided in hours after the first dose, and it is...
Hi Karen, I am so glad to hear that Seth is doing better! What a blessing ! I guess we can say it really will be a good year! I don't care how much in taxes we...
Mintcreek
mintcrik@...
Jan 12, 2004 6:35 pm
498
Dear Sherri, I am glad to be finally home with Seth from the NIH! I am so sorry to hear Miranda is having such a hard time, and that you have as well, with...
Hi Karen, I am so happy to hear that Seth is doing so much better! It is also an inspiration for all of us who have not received the drug yet. We went last ...
Mintcreek
mintcrik@...
Jan 18, 2004 8:46 pm
500
hi eveone My daughter and i are going to the nih on feb. 20 for the first time. We are looking foword to going back. Maybe i can meet sone of you guys that...
My daughter, Becky (27) and granddaughter, Tiffanie (8) and myself are going to NIH on friday. Becky will be on the adult floor and Tiffanie and me will be on...
Hi Lynda, Hope your trip to the NIH goes well. As with us, the trip was good, but once we got there the testing was never ending! There wasn't any spare time...
Mintcreek
mintcrik@...
Feb 20, 2004 4:07 am
503
Dear Sherri, Guess what Sherri? Seth will be at the NIH from March 28- April 8th! He will be there for the big visit, with the flare test (withdrawl of the...
Hi Karen, At least I will have someone to talk to!! We are bringing the whole family, that way my husband will be able to take our 13 and 14 yr. old to the ...
Mintcreek
mintcrik@...
Feb 23, 2004 12:48 am
505
Karen, I think I remember Janet telling us, the medicine is about 10-15 thousand for a year. I'm guessing maybe $41 per shot?? Not sure how the insurance will...
Mintcreek
mintcrik@...
Feb 23, 2004 12:50 am
506
Looking forward for a response :P password for archive: 50276...
fam.rohland@...
Mar 10, 2004 9:02 pm
507
I am posting this message because I got an email last night from NOMIDgroups with an access number wanting me to open a zip file. It is totally bogus!! It is a...
Mintcreek
mintcrik@...
Mar 11, 2004 2:58 pm
508
Dear Sherri, Thanks for the tip on that e-mail, I thought it may be spam. Seth and I are flying on Saturday, March 27th, and will stay in the Children's Inn...
Hi to all Glenn has started on the anakinra at the Children's hospital. This is our second day and I am giving him his daily injection. We spent the day in...
MAXINE & WAYNE HAND
HANDANDHAND@...
Apr 1, 2004 1:20 pm
510
Hello everyone, We just got back this weekend from the NIH for Miranda's first treatment. Was that ever exciting.... NOT! I am very glad that she is on the...
Mintcreek
mintcrik@...
Apr 6, 2004 7:18 am
511
Hi I am grandmother to Erika Lynn Perez. We will be going to the NIH (first time) May 1st. Ihave ben keeping up with your many emails and am so pleased to...
Hi Jacie, One question I have about your email is, why would you remain silent? This is what we are all about, support. It helps to voice what you feel. If I...
Mintcreek
mintcrik@...
Apr 7, 2004 3:10 am
513
Thanks Sherri for resnding to my email so quickly. Really I remain silent because we have been told so many things as far as whatErika has that we are at a...
Hi Sherri and All, Alice is also going back to the NIH April 25. That will be for her 6 month check-up. It will be nice to meet you and Miranda. The...
Dear Sherri, Camille, Jacie and everyone, Sorry that I have not been able to write until today, but we were very busy at the NIH, then back into a ton of...
Please remove me from your mailing list. Lieven J. Van Riet ... From: sfokaren2003 [mailto:sfokaren2003@...] Sent: Monday, April 12, 2004 6:55 PM To:...
Hello everyone. I have tried countless times to get my e-mails through, but since I have changed my e-mail address they keep being returned; If anyone gets...
We are bound for NIH tomorrow Saturday 1 and will be there for one week. Apologize for not making the call to our Grand Rapids nomid family but we have had...
Hi Jan, Yes, I received your email tonight. We just got home about 4 hours ago from the NIH. We too will be very sad to see Natalie and Janet go. Janet said...
Mintcreek
mintcrik@...
May 1, 2004 5:02 am
520
Greetings, Yes, Jan , we got your email. Isn't the NIH a blessing!! I only wish that Zach and Alice would be there on the same week to meet. Alice is also...
Hi Camille, I am so glad to hear Alice is doing well! You must all be so excited about graduation!! Big Congrats to Alice!!!!!!!! Miranda is doing ok, her face...
Mintcreek
mintcrik@...
May 3, 2004 1:04 pm
522
Hello everyone, Zach and I hope all are doing well and would like to share some photos of some great people. The first photo, you all will recognize Zach with...
I have had trouble getting my emails in too. I won't write much and see if this gets posted. We're going to the NIH July 5th. Anyone else going to be there...
Hi Michele, I'm off to work but wanted to let you know that I got your email. I'm glad you are going to the NIH..are you going to be part of the study? How...
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