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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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#2268 From: "aislingmcn" <aislingmcn@...>
Date: Tue Jul 7, 2009 9:48 pm
Subject: Hellooooooooo 		aislingmcn
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Hi there everyone-greetings from Ireland...

Happy birthday Zach....

Eveyone I'm sooo busy at the moment as I am running a campaign against the

cutbacks in Crumlin....I'm doing interviews all the time and having meetings etc

with all sorts of people to try and get our children's hospital running the way

it should be-its exhausting but I feel we are getting somewhere at last.

I think of you always and am sorry I've not been around....talk soon.Lots of

love Aisling & Jack xxx


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#2269 From: "Louise Keatley" <speech58@...>
Date: Tue Jul 7, 2009 9:57 pm
Subject: Re: Hellooooooooo 		speech58
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Hi Aisling
hope your campaigning gets results.
We are all well here.
My middle son Joshua is in London at the moment and is off to venice and paris next week.
Tom's latest LP had his best csf results since he started treatment, so we are keeping him at 100mg.
 
He is getting an award for junior lifesaver of the year at our local surf club
and is still surfing most days even though the weather is very cold.
 
There's been heaps of whales and dolphins lately, and even a shark attack on a surfer at a beach 10 min from here.
I try not to think about that!
 
Hope Jack is travelling well at the moment and hi to all our Nomid families.
 
Louise
 
(Tom in Australia's mum)
----- Original Message -----
From: aislingmcn
Sent: Wednesday, July 08, 2009 7:48 AM
Subject: [nomidsyndrome] Hellooooooooo

Hi there everyone-greetings from Ireland...
Happy birthday Zach....
Eveyone I'm sooo busy at the moment as I am running a campaign against the cutbacks in Crumlin....I'm doing interviews all the time and having meetings etc with all sorts of people to try and get our children's hospital running the way it should be-its exhausting but I feel we are getting somewhere at last.
I think of you always and am sorry I've not been around....talk soon.Lots of love Aisling & Jack xxx


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#2270 From: "sfokaren2003" <sfokaren2003@...>
Date: Thu Jul 9, 2009 12:18 am
Subject: Re: Hellooooooooo 		sfokaren2003
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Aisling,



You are doing a good thing, so I hope things go your way soon.  It is such a sad

thing that we must have to fight these battles for our kids, on one level or

another.



I hope that Jack has been doing well too, considering all that is going on!



Karen

--- In nomidsyndrome@yahoogroups.com, "aislingmcn" <aislingmcn@...> wrote:

>

> Hi there everyone-greetings from Ireland...

> Happy birthday Zach....

> Eveyone I'm sooo busy at the moment as I am running a campaign against the

cutbacks in Crumlin....I'm doing interviews all the time and having meetings etc

with all sorts of people to try and get our children's hospital running the way

it should be-its exhausting but I feel we are getting somewhere at last.

> I think of you always and am sorry I've not been around....talk soon.Lots of

love Aisling & Jack xxx

>


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