Hello Everyone. I know it has been a long time since I posted about the NOMID Fundraiser and several of you have tried to contact me. I am very sorry for this...
Hello Jennifer I'm sorry to here about your feratures in your feet . now in your spin.Is the ferature in the lower part of your spin or at the top.Does it give...
Great news karen, what wonderful news how is the baby and how is lucas doing, and also how are you. Im sure your very busy and got yur hands full now. Thanks...
Hello everyone, I hope everyone is doing OK. Michael just came back from our 2 year follow up, he did mostly well but there are a few things that surprised...
Karen, I had a question about Michael if you don't mind. You mentioned he had a DEXA scan at his last visit. Has he been on prednisone for his disease? I was...
Hi Jennifer, Thanks for your reply, no, he has managed to avoid significant lengths on steroids. That is one thing I have felt so lucky for since I have seen...
Dear Jennifer, Karen and all, First of all, I am so sad Jennifer that things are not going as hoped for your bones, and also for Mikko. Also, I am sad that...
I realize that this states top conditions but folks this is one way of getting word about Nomids out to the public. I am keeping up with all reads that come to...
Hi just wondering if any one will be at the NIH on the 6th on Jan 08 as we will be there with Fynley for a week, if so it owuld be great to meet up with you. ...
Lisa Tilly will still be here and I have returned back this last Thursday so look forward to meeting you all on the 6th January! Happy Christmas Regards Colin...
Hello everyone, Zach and I will be at the NIH Jan 6th - 10th. We will be arriving at the children Inn, Sunday evening late. Looking forward to meeting all...
I am quite overwhelmed, i have just found five minutes to have a peak on the group, to see if there is any post, and have seen that you will all be there the...
hello to all. My daughter and I will be going back to the nih feb 18022 is anyone going then.wow there is alot of you going back I hope everyting gose well...
Dear All, It sounds like the tiem to be at the NIH is Jan 6th! Wow, I hope you all have a good time, and I wish we were there then too. Becky, to bad we will...
Hi Everyone Merry Xmas from Louise & Tom in Australia, Tom has just passed 2 years since starting Anakinra and is still doing really well. He is doing surf...
Happy New Year to Everyone! I hope all of you are having a wonderful holiday season. I hope this new year will bring many happy times for all of you. We are...
Hello Everyone. Some of you may know that I have been dealing with multiple fractures (6 to date) in my feet and now in my spine. These have all occurred in a...
Hi, We are heading up to NIH on Sunday March 16 and will leave Wednesday morning the 19th if all plans stay the same! If anyone is going at that time please...
Researches conducted by The American Academy of Cosmetic Dentistry have found some interesting results. According to a study, vast majority of Americans...
Happy New year to all! We have not posted lately but have enjoyed reading all the news form others. Alice is doing well, except for today when she woke up...
Hello everyone, We have to go back in 3-4 months, due to Zach's ongoing concerns. As far as his avascular necrosis, it has remained localized in his right...
Mike and Kieran are getting to the NIH this coming Tuesday 1/22. ... concerns. As far as his avascular necrosis, it has remained localized in his right femur....
Zach, I am diggin the goatee!! ... concerns. As far as his avascular necrosis, it has remained localized in his right femur. He had a MRI on his left leg and...
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