I banned him a couple of days ago. I wonder if there should be a policy where new members either post there story/interest to group or that they post to me. I...
Hi to all, Well it has happened again, I thought one funeral would be enough for the year, but.... My dad died saturday! My poor mother is just devastated....
Oh my god Im so sorry to hear your news, I know how it feels to lose your dad as we lost mine 18 months ago now. My thoughts are with you at this sad time ...
I'm sorry to hear about your Dad. I pray that you will be held up during this difficult time. We will be a the NIH with you. See you then, Camille Lieffers...
Dear Sherri, I am so sorry about your father's sudden death- you have been through the worst times lately, and I wish that there was more we could do for you...
I am so sorry to here about your dad .Tiffanie and I will be there ar the nih with you guys agian.seen you there .Becky lieffers <lieffers@...> wrote:...
HI, Joseph and I will be going to NIH for our follow up. We will arrive late Monday and be at the clinic on Tuesday. Hoping to head out Wed. Just checking to...
Hi, hope everyone is doing well. It's been a while since I've posted anything, I pray everyone is having a wonderful summer! We just got back from seeing a...
Dear Friends, I have good news-the NOMID alliance got the grant from Regeneron this summer to fund the printing/mailing of our brochure about NOMID, FCAS and...
Karen that's fine I will get the negs transferred to a higher grade CD and send you the jpeg file. Great to hear about the funding hopefully this will put an...
Kate, We have never met, but Isaac and I will be at NIH the 22nd - 26th.? I would love to meet you and Alex.??Isaac is a very small 3 year old with curly,...
Karen, This is wonderful news! Information to everyone will only help us out in the long run! Are you going to the AAP convention at the end of October? ...
Dear Kate, Thanks so much to you, and Alex for being willing to let us use his baby photo for the brochure. It will make a huge difference for doctors to see...
Karen, I will try to dig up some pictures of Kieran. I know I have some but I don't know if I have any close-ups. ... From: nomidsyndrome@yahoogroups.com ...
Greetings to Everyone, I am Jennifer Earnhart and I am a board member of the NOMID Alliance. I am also a patient at the NIH with the genetic mutatiion of the...
Another note... If any of you know of anyone who is not part of this yahoo group and you think they would like to participate please let me know. I can email...
Hi Colin Im so sorry to hear your news, please pass on my condolences to your wife as Im sorry to say I know how that feels ! I hope Tillys op goes really...
Hallie and I will be at the NIH from October 3rd-10th. I was just wondering if anyone would be there during that time. I have seen where some of you will be...
Dear Colin and family, I hope all goes well for Tilly and her operation, and we will keep you all in our thoughts and prayers at this time. Our sympathies to...
hello eveone . I' sure Tiffanie would love to do a picture for the event .can you tell me what i need to do .Becky sfokaren2003 <sfokaren2003@...> wrote:...
Im sure Charlie would like to as well, i would need to get it shipped to you then somehow wouldnt I? I saw your sizes and dates so will have a word with him...
Thank you so much for the response that I received today from several of you regarding the upcoming Art Festival that will benefit the NOMID Alliance. So far I...
Dear Karen and NOMID parents, I apologize for not writing sooner. This summer has flown by. I have had many family concerns this past year and most are...
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