Hello all, I do not write in often and wanted to say hello. Isaac is 3 years old today. It is a day of a lot of reflection for me. We have come a long...
Hi Kathe, Reading your post made me cry, I too had the same reflection on Michaels 3rd birthday, it was an onslaught of tears and belly laughs! It is...
Dear Kathe & Karen, Thank you for your lovely emails and Happy Birthday to Isaac. I feel very blessed today to send Tom of to represent the region at State...
Hello to everyone!! I am so sorry it has taken me so long to write! Between work and kids, life is flying right by! Anyhow, life has been crazy, my sister died...
Wow Sherri You have had heaps going on. Wishing you all the strength you need to handle the challenges you've been facing. And try to have a happy birthday! ...
Dear Sherri, I am so sorry that your father has stage 4 cancer and your sister died recently. Plus Miranda's headaches and your health issues, you need a ...
sherri i'm ao aorry to here about your sister ..Happy birthday to youtoo.My daughter Tiffanie and I are going back the same week as you .take care becky ...
I banned him a couple of days ago. I wonder if there should be a policy where new members either post there story/interest to group or that they post to me. I...
Hi to all, Well it has happened again, I thought one funeral would be enough for the year, but.... My dad died saturday! My poor mother is just devastated....
Oh my god Im so sorry to hear your news, I know how it feels to lose your dad as we lost mine 18 months ago now. My thoughts are with you at this sad time ...
I'm sorry to hear about your Dad. I pray that you will be held up during this difficult time. We will be a the NIH with you. See you then, Camille Lieffers...
Dear Sherri, I am so sorry about your father's sudden death- you have been through the worst times lately, and I wish that there was more we could do for you...
I am so sorry to here about your dad .Tiffanie and I will be there ar the nih with you guys agian.seen you there .Becky lieffers <lieffers@...> wrote:...
HI, Joseph and I will be going to NIH for our follow up. We will arrive late Monday and be at the clinic on Tuesday. Hoping to head out Wed. Just checking to...
Hi, hope everyone is doing well. It's been a while since I've posted anything, I pray everyone is having a wonderful summer! We just got back from seeing a...
Dear Friends, I have good news-the NOMID alliance got the grant from Regeneron this summer to fund the printing/mailing of our brochure about NOMID, FCAS and...
Karen that's fine I will get the negs transferred to a higher grade CD and send you the jpeg file. Great to hear about the funding hopefully this will put an...
Kate, We have never met, but Isaac and I will be at NIH the 22nd - 26th.? I would love to meet you and Alex.??Isaac is a very small 3 year old with curly,...
Karen, This is wonderful news! Information to everyone will only help us out in the long run! Are you going to the AAP convention at the end of October? ...
Dear Kate, Thanks so much to you, and Alex for being willing to let us use his baby photo for the brochure. It will make a huge difference for doctors to see...
Karen, I will try to dig up some pictures of Kieran. I know I have some but I don't know if I have any close-ups. ... From: nomidsyndrome@yahoogroups.com ...
Greetings to Everyone, I am Jennifer Earnhart and I am a board member of the NOMID Alliance. I am also a patient at the NIH with the genetic mutatiion of the...
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