I just wanted to let you know that there is a service that is offered in google, called google grants, I am not sure if this would work in your case Colin to...
Dear Karen Thank you for your kind comments and directing us to possible help. A friend of mine contacted me yesterday to inform me that a relative's employer...
Dear Karen Thank you for your kind comments and directing us to possible help. A friend of mine contacted me yesterday to inform me that a relative's employer...
Dear All, Thanks Karen A. for the Google Grants info, I copied it and will pursue it once we get our IRS tax-exempt letter (hopefully soon, I sent off our...
Hi Karen, Congratulations on your news I hope your pregnancy all goes well and look forward to hearing your news in another 6 months or so time ! Well done...
Dear Karen Moore and Everyone, Karen M., Thanks for the support and offer to help! I think that we will be able to have enough of the brochure made to use in...
To everyone, Look in the bottom corner of page 3 in the recent Children's Inn newsletter, to see Kayla's cute photo. She looks wonderful! Hallie Earnhart is...
Colin, I will send it to you when we get it done, ina few months! we are still working on it. good luck with your cause, and I hope the surgery helps Tilly! ...
Hi Karen, you are more than welcome to use some baby pictures of charlie in the brochure i have some corkers of when he was bad and when he was very small, if...
Dear Everyone, Thanks Karen Moore for the offer of photos! Send them to me privately to my e-mail or to the NOMID Alliance site e-mail. I would love to have...
Hi All, Sorry we haven't been on much. Tom is going really well 18 months after starting treatment. His CSF is still not completely right. His hearing is down...
Hi Louise, I saw your past on the yahoo group and saw your question about the neuropathy problems. I first would say that I would never begin to diagnose or...
Thanks for the reply Jennifer, My neuropathy is causing weakness in my feet and lower legs and now muscle atrophy in my calf muscles. I have foot drop & weak...
Dear Jennifer and Louise, Sorry to hear of your suffering, and it must be frustrating on top of painful! As moms, it is so hard to be down or unable to get...
Thanks Karen, None of us were tested for Nomid since we did not appear to have symptoms. I was referred to a Neurologist and Nerve conduction and EMG tests...
Hello to everone I just want to se how everone is doing. My daughter tiffanie is doing very well .I still having the headachesand a little heal pain now.but...
Hi Becky, My daughter Alice and I will be at the NIH the same week as you. Alice is 22 now and I think it will be great to meet you and your daughter. See...
hello thats cool .are you staying a the childens inn .we are .take carrebecky lieffers <lieffers@...> wrote: Hi Becky, My daughter Alice and I will be at...
Hello to all, We got called this week by Nikki to change Seth's follow up trip to the NIH, since Dr. Goldbach-Mansky will NOT be at the NIh the week of AUgust...
Hi Everyone, Thanks for all the info on possible new treatments.Karen. I'm glad the pregnancy is moving along OK. Three boys don't make you too crazy!, but we...
Hi Louise and Everyone I know it's been awhile, but I do read all messages that come in. Glenn has been pretty busy; he now has hearing aids and an FM pack...
Wayne Hand
HANDANDHAND@...
May 31, 2007 11:58 pm
1433
Hi Maxine, Lovely to hear from you I'm so sorry you are having problems at school & about Glenn's bone problems. Good luck with the advocacy. I know the...
Hello all, I do not write in often and wanted to say hello. Isaac is 3 years old today. It is a day of a lot of reflection for me. We have come a long...
Hi Kathe, Reading your post made me cry, I too had the same reflection on Michaels 3rd birthday, it was an onslaught of tears and belly laughs! It is...
Dear Kathe & Karen, Thank you for your lovely emails and Happy Birthday to Isaac. I feel very blessed today to send Tom of to represent the region at State...
Hello to everyone!! I am so sorry it has taken me so long to write! Between work and kids, life is flying right by! Anyhow, life has been crazy, my sister died...
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